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Implementing a Sub-Regional Virtual Cancer Registry in the Caribbean to Support Cancer Registration

Learn how the IARC Caribbean Cancer Registry Hub is working with the Organization of Eastern Caribbean States (OECS) to establish a virtual cancer registry in 10 Caribbean countries. This approach aims to improve data availability, standardization, and dissemination, ultimately informing cancer control efforts in the region.

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Implementing a Sub-Regional Virtual Cancer Registry in the Caribbean to Support Cancer Registration

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  1. NAACCR /IACR Combined Annual Conference June 11 – 13, 2019, Vancouver, BC, Canada Implementing a sub-regional virtual cancer registry to support cancer registration in 10 Caribbean Countries Sarah Crooks Programme Coordinator IARC Caribbean Cancer Registry Hub Caribbean Public Health Agency (CARPHA) Trinidad and Tobago

  2. The IARC Caribbean Cancer Registry Hub • One of six regional IARC Hubs worldwide • Became operational in 2015 • Based at the Caribbean Public Health Agency (CARPHA), in Port of Spain, Trinidad & Tobago • Operations managed by 3 CARPHA staff members with technical and financial support provided by multiple partners (NCI, NAACCR, IARC, CDC, PAHO) • MISSION: To improve the availability, use and dissemination of high-quality cancer data to inform cancer control in the Caribbean region

  3. Organization of Eastern Caribbean States (OECS) • International Inter-governmental Organisation • Formed in 1981 with 7 Eastern Caribbean countries • Now a twelve-member grouping of islands • Established political and economic ties • In 2016, OECS Heads of Government established the OECS Health Unit • In the 2017 Fort de France Declaration the OECS Health Ministers committed to joint approaches in health.

  4. PBCR

  5. Key features of the proposed approach

  6. Key Requirements • Advocacy and networking with key stakeholder within the OECS • Capacity building in-country on recommended Standard Operating Procedures (SOP) and data abstraction (for countries with no PBCR and for countries with PBCR) to ensure standardization across reporting countries • Ensuring the appropriate infrastructure to allow for in-country data abstraction and remote reporting of data to the central server • Data sharing agreements between countries to ensure complete capture of data on cases

  7. Achievements to date EC-DON is a pathology network of OECS laboratory professionals, oncology diagnosticians and the oncology community working to improve pathology reporting in support of better cancer diagnosis and treatment.

  8. Expected Outcomes • Reporting of cancer incidence data from all OECS countries to one central database • Providing a wholistic view of the cancer burden within the OECS • Development of useful national and regional reports on cancer • Allows for immediate feedback of results to reporting countries • Facilitates evidence-based planning for cancer prevention and control at the national and regional levels

  9. Authors • Sarah Crooks • Programme Coordinator, IARC Caribbean Cancer Registry Hub • CARPHA, Trinidad & Tobago • Brenda Edwards • Senior Advisor, Office of the Director, Division of Cancer Control and Population Sciences, NCI • Damali Martin • Global Health Coordinator, Epidemiology & Genomics Research Program, Division of Cancer Control and Population Sciences, NCI Carlene Radix Head of Health OECS • Glennis Andall-Brereton • Principal Investigator, IARC Caribbean Cancer Registry Hub • CARPHA, Trinidad & Tobago • Les Mery • Global Programme Manager, Cancer Surveillance Unit, IARC • Nkosi Husbands • IT Specialist, IARC Caribbean Cancer Registry Hub • CARPHA, Trinidad & Tobago

  10. Thank You Any questions?

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