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NHS North Trent Cancer Network – Breast Cancer Awareness Evaluation: Interim Pre-Stage Summary

NHS North Trent Cancer Network – Breast Cancer Awareness Evaluation: Interim Pre-Stage Summary. By DJS Research Ltd Date: February 2012. Your contacts Name: Alasdair Gleed, Research Director & Alex McCluckie, Research Executive Phone: 01663 732721 Web: www.djsresearch.co.uk

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NHS North Trent Cancer Network – Breast Cancer Awareness Evaluation: Interim Pre-Stage Summary

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  1. NHS North Trent Cancer Network – Breast Cancer Awareness Evaluation: Interim Pre-Stage Summary By DJS Research Ltd Date: February 2012 Your contacts Name: Alasdair Gleed, Research Director & Alex McCluckie, Research Executive Phone: 01663 732721 Web: www.djsresearch.co.uk E-mail: agleed@djsresearch.com & amccluckie@djsresearch.com

  2. Structure 1 Introduction 2 Sample Breakdown 3 Knowledge of Symptoms 4 Confidence, Skills & Behaviour in Relation to Breast Changes 5 Barriers to Seeking Medical Help 6 Knowledge of Age-Related and Lifetime Risks 7 Knowledge of Breast Screening 8 Risk Factors

  3. 1 Introduction 1

  4. IntroductionBackground and Methodology (1) • North Trent has one of the highest levels of cancer incidence and mortality in the country. Breast cancer forms 14% of the regions overall cancers. Survival rates are particularly poor in women over the age of 70. • In this context, NHS North Trent Cancer Network (NTCN)is undertaking a targeted piece of work to develop interventions to address the barriers that may prevent individuals presenting earlier for investigation and treatment. • As part of this, NTCN commissioned DJS Research to carry out a surveyof women in the 70+ age group across the Network in order to assess their awareness of the signs and symptoms of breast cancer both pre and post implementation of a social marketing campaign / intervention. • The views of the target population are to be measured through conducting a face-to-face survey using the Breast CAM developed by Cancer Research UK which is a validated tool to enable the measurement of awareness of signs and symptoms of breast cancer.

  5. IntroductionBackground and Methodology (2) • This report details the results of the pre-stage of the research (carried out just before the intervention takes place). • This provides a benchmark for comparison – the survey will be repeated following the intervention and results compared to identify the impacts of NTCN’s activities. • Within the Network, the 70+ year old female population segment totals approx. 121,570 women in North Derbyshire and South Yorkshire which has a total population of 1.8 million dispersed across 6 PCTs. • As such, quota sampling was utilised in order to ensure that the above make-up was reflected in the sample shown below.

  6. IntroductionBackground and Methodology (3) • 441 face-to-face interviews were carried out using quota sampling to achieve a representative sample of the local population. • All respondents were screened to ensure they were aged 70+, female, and residents of the local area.

  7. 2 Sample Breakdown 2

  8. Half of respondents are renting council or social housing, and two thirds are living alone. Who do you live with? Which best describes your living arrangements? % of respondents Q22/23 Base: All respondents 441

  9. The majority of respondents are without a vehicle and left full time education at the age of 15 or less. What age did you leave full time education? Does anyone living in your home have a car/van available for use? % of respondents Q24/25 Base: All respondents 441

  10. Reflecting their age group, most are pensioners. Could you tell me your sexual orientation? Could you tell me where your household gets most of its income from? % of respondents Q26 Base: All respondents 441 Q27 Base: All respondents 440: Balance: Refused

  11. Twenty-six respondents (6%) have had Breast Cancer in the past however all were willing to take part in the research. Nearly all are registered with a GP. Are you happy to continue? Have you ever had breast cancer? % of responses % of responses • 439 of the 441 respondents were registered with a GP Q1 Base: All respondents 441 Q1a Base: All respondents who have had Breast Cancer 26

  12. 3 Knowledge of Symptoms 3

  13. Lumps of some description along with discharge and bleeding from the nipple are the main warning signs in the minds of most respondents. Fewer (less than half) thought redness or a rash were symptoms. Can you tell me whether you think any of these are warning signs of breast cancer? (OVERALL) % of respondents Q3 Base: All respondents 441

  14. Awareness levels appear lowest in the Sheffield area, and higher than average in Rotherham. Can you tell me whether you think any of these are warning signs of breast cancer? (BY PCT) = sig lower = sig higher % saying yes Q3 Base: All respondents 441

  15. 4 Confidence, skills & behaviour in relation to breast changes 4

  16. The majority check their breasts at least every 6 months (70%) – however in Sheffield nearly half (48%) stated that they rarely or never check. How often do you check your breasts? Are you confident you would notice a change in your breasts? % of respondents = sig lower = sig higher Q4/Q5 Base: All respondents 441

  17. Most have never been to see a doctor about a change in their breasts, however this tendency is much less pronounced amongst NHS Rotherham respondents. Have you ever been to see a doctor about a change you have noticed in one of your breasts? % of respondents Q6 Base: All respondents 441 = sig lower = sig higher

  18. 5 Barriers to seeking medical help 5

  19. Difficulty in making appointments is impacting upon just under a third (30%) of peoples’ propensity to visit the doctor. Fear and worry also appear to be factors. Would any of these put you off going to the doctor? (OVERALL) % of respondents Q8 Base: All respondents 441

  20. Respondents from NHS Doncaster are more likely to find a number of issues off putting. Would any of these put you off going to the doctor? (BY PCT) % saying yes Q8 Base: All respondents 441 = sig lower = sig higher

  21. Being able to see a doctor of the same sex is an important issue for a number of respondents. Is there anything else that you can think of that might put you off going to the doctor? “If it was a man.” “If it was a male doctor, that could be embarrassing.” “Nothing except I prefer a lady doctor. I do not like to see male doctors for this type of problem.” “I would only want a lady doctor, if it’s a male I wouldn't even go.” Sex of the doctor • A variation due to age was apparent amongst respondents with a number of those surveyed feeling as though ‘at their age’ they do not tend to worry about such issues: • “I don't think anything would put me off, not at my age, perhaps if I was younger.” • “No not now I'm old, it's more so when your young.” • “Nothing, especially at my age.” Q9 Base: All respondents 441

  22. 6 Knowledge of age-related and lifetime risk 6

  23. Just over half (52%) appear to think that women of any age are equally likely to get breast cancer. This falls to 32% in Rotherham, but is 70% in Sheffield. Only 2% think that over 70s are the most at risk group. In the next year, who is most likely to get breast cancer? % of respondents = sig lower = sig higher Q10 Base: All respondents 441

  24. A degree of uncertainty about breast cancer prevalence suggests that the coming campaign may prove timely, particularly in Sheffield and Bassetlaw. How many women will develop breast cancer in their lifetime? % of respondents Q11 Base: All respondents 441 = sig lower = sig higher

  25. 7 Knowledge of breast screening 7

  26. There is a high degree of awareness of the NHS Breast Screening Programme although only 30% know the correct age band for the first invite to the scheme. Is there an NHS Breast Screening Programme? At what age are women first invited to the NHS Breast Screening Programme? At what age do women receive their last invitation to the NHS Breast Screening Programme? % of respondents Q12 Base: All respondents 441 Q13/14 Base: All respondents who think there is a screening programme 369

  27. The vast majority (89%) had been invited on to the NHS Breast Screening Programme with an equal amount having actually been screened. Have you ever had breast screening on the NHS Breast Screening Programme? Have you ever been invited for breast screening on the NHS Breast Screening Programme? % of respondents Q15 Base: All respondents 369 Q16 Base: All respondents who had been invited 369

  28. 8 Risk factors 8

  29. A relatively high degree of uncertainty about risk factors is apparent, particularly amongst NHS Rotherham residents. How much do you agree that each of these can increase the chance of getting breast cancer? Respondents from NHS Rotherham are more likely than all other PCTs to be unsure whether being overweight, drinking 1 unit a day, having children later in life, starting your periods early and getting less than 30 mins of exercise 5 times a week increases your chances Respondents from NHS Barnsley are more likely than all other PCTs to be unsure of whether past experience increases your chances Respondents from NHS Rotherham are more likely than all other PCTs to agree that past experience increases your chances Respondents from NHS Sheffield are less likely than all other PCTs to agree that using HRT increases your chances % of respondents Q17 Base: All respondents 441

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