Personal Health Records

1. Personal Health Records

2. What is a PHR?

3. PHR is a tool for collecting, tracking and sharing important, up-to-date information about an individual’s health or the health of someone in their care.

4. EMR EMR EMR EHR (NHIN) PHR PHR PHR PHR PHR

5. Source: National Committee on Vital and Health Statistics, 9/9/2005 Letter report to Secretary Leavitt on PHR systems

6. How do you manage your personal health information?

7. PHR Principles • Each person controls his or her own PHR. • PHRs contain information from one’s entire lifetime. • PHRs contain information from all health care providers. • PHRs are accessible from any place at any time. • PHRs are private and secure. • PHRs are “transparent.” Individuals can see who entered each piece of data, where it was transferred from and who has viewed it. • PHRs permit easy exchange of information with other health information systems and health professionals Source: Markle foundation

8. PHR Dimensions • Scope and nature of content • Source of information • Features and functions • Custodian of the record • Data storage • Technical approaches • Access control

9. Scope and Nature of Content • Scope • Single organization vs. cross-organizational • Since onset of relationship vs. “womb-to-tomb” • Nature of content • Clinical data • Financial/administrative data • Patient submitted data • Standardized vs. Proprietary

10. Source of Information • Providers • Payer • Patient/Consumer • Caregiver

11. Features and Functions • View personal health data • Exchange secure messages with providers • Schedule appointments • Renew prescriptions • Enter personal health data • Decision support (e.g. alerts/reminders) • Import/export data • Obtain healthcare/disease information • Track, manage benefit & services • PHR access tracking, access control management

12. Custodian of the Record • Provider • Payer • Patient • Government • Employer • Third party • Vendor • Community utility

13. Data Storage • Network (Internet) accessible database • Provider’s EHR • Payer system • Vendor system • Government system • Community utility • Patient/consumer home computer • Portable • Paper record • Smart card • CD, DVD, optical card • Thumb drive (e.g., USB device) • RFID

14. Technical Approach • Data standards • Interoperability • Security • Authentication • Privacy

15. Party Controlling Access • Patient • Healthcare provider • Government • Service Provider • Others?!

16. Oxycodone • Hydrocodone • Diazepam • Temazepam • Alprazolam • Doxylamine

17. 7 steps to establish your PHR • Contact all doctor’s offices about your medical records • Get information from doctor’s office. • Maintain you PHRs. • Find a PHR tool for electronic storage • Bring PHR to future visits • Carry card with Vital Info. • Protect your PHR Source: www.myphr.com

18. Common Barriers

19. <1> Business Model

20. <2> Design

21. <3> Privacy and Security

22. <4> Interoperability and Standards

23. Try it yourself • Revolution health (http://www.revolutionhealth.com/) • HealthVault (http://www.healthvault.com) • GoogleHealth (http://www.google.com/health) • It Runs In My Family (http://www.itrunsinmyfamily.com)