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A STRONG PATIENTS’ VOICE TO DRIVE BETTER HEALTH IN EUROPE

Annual General Meeting Working group sessions. A STRONG PATIENTS’ VOICE TO DRIVE BETTER HEALTH IN EUROPE. Build and Grow EPF. 3 level relation EPF – members, members to EPF, EPF to Member States More credibility for EPF – use ‘grass roots’ info Speaking with one voice externally

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A STRONG PATIENTS’ VOICE TO DRIVE BETTER HEALTH IN EUROPE

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  1. Annual General Meeting Working group sessions A STRONG PATIENTS’ VOICE TO DRIVE BETTER HEALTH IN EUROPE

  2. Build and Grow EPF 3 level relation EPF – members, members to EPF, EPF to Member States • More credibility for EPF – use ‘grass roots’ info • Speaking with one voice externally • Open channel of communication – no hierarchy, regularity • Different roles – European orgs –louder voice in Brussels– National coalitiond – traction with national governments • EPF catalyst for common projects among members and dissemination point, sharing outcomes • Stronger media relations

  3. EPF - Strengthen the members More consultation and feedback on the policy issues • Use more examples from countries: disease areas to make the policy case – helps members to argue at national level • Info on upcoming policy consultation tracking system on the website so that members can prepare to be involved: FLEXIBILITY • Guidance on EU funding opportunities : big administration Specific meetings on funding/helpdesk • Transfer of policy experience/ good practice when an issue rises at national level – chat room

  4. EPF- Strengthen the members Reguar policy updates from national coalitiion latest developments concerns Specific presentaion from countries at EPF meeting - practical examples Practical insight to support the theoretical input ‘ patient experts’ Resource for future planning, mapping similar needs from several orgs More direct member to member links - inspiring EPF events Improve leadership skils, media comms skills Link persons technical issues/ clusters of people /theme

  5. EPF - 2020 Data and force to put forward our views – proactive • EPF is the driver, not backseat passenger • EPF – well known within the patients’ movement, with politicians at country level • NATURAL AND AUTOMATIC POINT OF REFERENCE • Effective pool of expertise for all the members • Reinforce patient organisations in next progamming period

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