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Maximizing the social impact of cancer registry data

Maximizing the social impact of cancer registry data.

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Maximizing the social impact of cancer registry data

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  1. Maximizing the social impactof cancer registry data

  2. “Putting timely, accurate and complete cancer statistics in the hands of citizens with powerful displays and data formats that enable people with different backgrounds to understand them is one of the most important contributions SEER has made” Barbara Rimer, DrPH, 2003

  3. How can we do better? • Broader goals • New audiences • Information design • Technology and tools • Strategic, proactive approach

  4. This project • Design & test new displays of cancer data • Propose best practices • Share with cancer registry community

  5. APRC Team

  6. Stakeholders • SEER • OCE • HCIRB • ACS • Cancer registries

  7. Meeting objectives • Important data stories • Priority audiences • Outcome of interest • Products and tools

  8. Structure of the day • Short orientations • Full group discussion • Small group activities • Consensus and next steps

  9. Communication effects:What are they and how do we get them?

  10. Doing this well could improve… • Social norms • Motivation to act • Demand for services • Knowledge & awareness • Perceptions, beliefs & attitudes Friemuth & Quinn (2004) Am J Public Hlth

  11. Unintended consequences? • Confusion • Unwarranted fear • Erroneous conclusions

  12. Improving chances of success • exposure • attention • understanding • elaboration • integration McGuire, 1989; Petty & Cacioppo, 1981

  13. Attention

  14. Attention

  15. Understanding

  16. Understanding

  17. Understanding

  18. Elaboration & Integration • Relevance & identity • Personal • Demographic • Geographic • Self-referential thinking

  19. “Unit of identity”

  20. “Unit of identity”

  21. “Unit of identity”

  22. Basic communication model Source Message Channel Receiver Effect

  23. Basic communication model Source Message Channel Receiver Effect Cancer registry data

  24. Basic communication model Source Message Channel Receiver Effect Cancer registry data Activity 1

  25. Basic communication model Source Message Channel Receiver Effect Cancer registry data Activity 1 Activities 2-3 Activities 2-3

  26. Basic communication model Source Message Channel Receiver Effect Cancer registry data Activity 1 Activity 4 Activities 2-3 Activities 2-3

  27. Engaging self-referential thinking – important, indicate what stimulates it More motivated to process deeply when information is perceived as relevant How do we do this? Local (geographic) Demographic, Context Facilitate understanding with: standardized forms Meaningful context: social math Add communication models Demography vs. Geography Units of identify: geographic (slide of town sign; Baltimore map) How heterogeneous is the unit of identity? Identity include demographics too – who is Hispanic? Example: “If you’re a man over 50…”

  28. Identity – unit of identity/place

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