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Designing Decision Aids to Help Patients Choose Treatment Options. Lyndsey Franklin, Catherine Plaisant , Ben Shneiderman HCIL. A Story. A Story. A Story. A Story. NCI Protective Treatments. Susan G. Komen fact sheets. A Decision Aid Framework. Decision Type Timescale
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Designing Decision Aids to Help Patients Choose Treatment Options Lyndsey Franklin, Catherine Plaisant, Ben Shneiderman HCIL
A Story NCI Protective Treatments Susan G. Komen fact sheets
A Decision Aid Framework • Decision Type • Timescale • Measurement Types • Data Source • Personalization Level • Information Format
Decision Type • Binary • Multi-Option • Combination • Continuous Management Baseline (No Treatment) Drug A Effect Price, Cameron, Butow 2007
Decision Type • Binary • Multi-Option • Combination • Continuous Management Drug Main Effects Drug Side Effects Hawley et al. 2008
Decision Type • Binary • Multi-Option • Combination • Continuous Management Treatment Choices Total Effect Of Treatment Choices Jones et al. 2011
Decision Type • Binary • Multi-Option • Combination • Continuous Management Jones et al. 2011
Timescale 5 year risk • Single Projected Point • Multiple Projected Points Zikmund-Fisher et al. 2008
Timescale • Single Projected Point • Multiple Projected Points Main Time Reference Additional Time Reference National Cancer Institute Risk Assessment
Measurement Types • Number of Side Effects • Side Effect Rates • Treatment Durations • Lifestyle Impact • Success Rates • Survival Rates • Mortality Rates • …
Data Source • Summary of Literature • Model Based • Electronic Health Records Susan G. Komen Fact Sheets… With References
Data Source • Summary of Literature • Model Based • Electronic Health Records Exposed Model Parameters Hughes Risk App
Data Source Patient Self-Reported Records • Summary of Literature • Model Based • Electronic Health Records Patients Like Me
Personalization Level • Generalized • Personalized Same Text For All Readers National Cancer Institute
Personalization Level • Generalized • Personalized Patients Must Understand Personalization Options National Cancer Institute Risk Assessment
Information Formats • Text • Graphics • Animation • Interactive National Cancer Institute
Information Formats • Text • Graphics • Animation • Interactive Brown et al. 2011 Same Metric 4 Ways
Information Formats • Text • Graphics • Animation • Interactive Animated recolor of figures every 2 seconds Han et al. 2012
Information Formats • Text • Graphics • Animation • Interactive Clicking Drives Information Shown Ancker et al. 2010
Designing a Decision Aid • Multi-Option (Decision Type) • Multi-Projected Points (Timescale) • Side effects, durations, patient preferences, success rates (Measurement Types) • Age and BRCA1 positive accounted for (Personalization Level) • Graphics with Interaction (Information Formats)
Conclusion • Decision aids support patient understanding and choice between treatment options • Categorizing decision aids with our framework exposes design opportunities • Static, single measurement graphs do not support treatment comparisons • Interaction and animation highlight and reinforce treatment differences
Thank You! Special Thanks to Dr. Seth Powsner. More Information lyndsey@cs.umd.edu www.cs.umd.edu/hcil/treatmentview This work is supported in part by Grant No. 10510592 for Patient-Centered Cognitive Support under the Strategic Health IT Advanced Research Projects Program (SHARP) from the Office of the National Coordinator for Health Information Technology.