1 / 10

Service User and Carer involvement in healthcare strategy

Service User and Carer involvement in healthcare strategy. Dr Robin Gutteridge, School of Health & Wellbeing, UoW Mark Pulford, NHS Walsall Parliamentarian Kirstie Macmillan Research & Governance Manager , Sam Kumar , Research & Governance Administrator, NHS Walsall.

kelly-frye
Download Presentation

Service User and Carer involvement in healthcare strategy

An Image/Link below is provided (as is) to download presentation Download Policy: Content on the Website is provided to you AS IS for your information and personal use and may not be sold / licensed / shared on other websites without getting consent from its author. Content is provided to you AS IS for your information and personal use only. Download presentation by click this link. While downloading, if for some reason you are not able to download a presentation, the publisher may have deleted the file from their server. During download, if you can't get a presentation, the file might be deleted by the publisher.

E N D

Presentation Transcript


  1. Service User and Carer involvement in healthcare strategy Dr Robin Gutteridge, School of Health & Wellbeing, UoW Mark Pulford, NHS Walsall Parliamentarian Kirstie Macmillan Research & Governance Manager , Sam Kumar , Research & Governance Administrator, NHS Walsall

  2. Underpinning assumptions • Patient and carer expertise undervalued • Public voice an important source of knowledge, expertise and feedback • Public Involvement not optional • Quality, safety and excellent patient experience cannot be achieved without collective effort

  3. Knowledge to shape commissioning: NHS Membership Organisation already in development • How should Service Users and Carers be involved in research activity? • What training is needed to convey confidence about participating effectively? • What type of research ought to be conducted?

  4. Methodology: making the consultation feasible • Qualitative focus group, following Kreuger and Casey (2000) n=5 • Adapted Report and Respond method to widen consultation ( Stronach and Maclure 1997) n =62 NHS Walsall Parliamentarians, representing 2000 My NHS Walsall members • Strategic report to Board

  5. Findings Clear desire to make it happen Making it happen is hard Anxiety on both sides Training needed Demonstrable impact needed to sustain commitment ; Board must follow through Inclusive/ emancipatory strategy and intention is not sufficient Clear systems and infrastructures essential • High motivation and interest • Substantial skills and knowledge • Willingness to contribute voluntarily/ expenses only • Leadership by Chair and Execs

  6. Deconstructing the barriers (1) • Success takes time • For trust, knowledge and commitment to build. • Show value: • mentors, training, accessible language,timing/ duration of meetings. Multiple Communication methods. Rewards other than money • Don’t underestimate the cost: • Resource intensive. Efficiency, reliability crucial. Administrative & Governance systems

  7. Deconstructing the barriers (2) • Vital to include excluded groups on their territory • May require partner networks (eg Community Associations) • People not hanging around waiting for involvement • Lives are busy & controlled by others • Ensure involvement is ethical and realistic

  8. Deconstructing the Barriers (3) • Everyone has to hear hard messages • Amateur doesn’t mean unprofessional • Sharing power and decision making leads to unexpected/ undesirable outcomes. • Learn by doing the work together. • Resolve issues as they arise, no perfect system. Tolerance, patience and transparent feedback is needed from all

  9. Conclusion • It can be done • My NHS Parliament is thriving • Outcomes from Parliament Task & Finish Groups report to Board through sub-committees • My NHS Parliamentarians sit on all Board Committees

  10. References • Kreuger R, Casey M-A., (2000). Focus Groups: A Practical Guide for Applied Research, 3rd edn., London, Sage • Stronach I., Maclure M., (1997). Educational Research Undone: The Postmodern Embrace, Buckingham, Open University Press

More Related