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The SEARCH Project

The SEARCH Project. 7 years on; learning and reflection Sophie Clyne January 2011. Process of search. Recruitment- to be populated . Further steps Timeline of recruitment, including demographics to identify recruitment trends and triggers. Governance of search.

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The SEARCH Project

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  1. The SEARCH Project 7 years on; learning and reflection Sophie Clyne January 2011

  2. Process of search

  3. Recruitment- to be populated Further steps • Timeline of recruitment, including demographics to identify recruitment trends and triggers

  4. Governance of search Due to the structure of the three meeting groups, there are individuals which sit across several groups. Several individuals sit on both the Operational Team and the Management Committee, which allows for a good communication pathway. Three members all sit on the Steering Committee in addition to the Management Committee, which again allows for improved communication and dissemination. The SEARCH Steering Group shows clear commitment and prioritisation from individuals involved; very high attendance from leading investigators

  5. Communication and Dissemination Strategy

  6. Observations and reflections from SEARCH process and project • Highly respected and regarded by all those involved • Key to success has been relationships built through it; the trust and dedication from individuals to the project. This was apparent in all those that the project was discussed with. • High prioritisation all the way through from board meetings and high presence at the Centres of SEARCH staff • Clear communication channels across the Sax and with all those involved out in the field • Areas of struggle initially: approach and retention of staff • Areas of struggle now; continued funding, the continued prioritisation and buy in from funding organisations • Although I wasn’t able to speak to families who were involved in the study, I felt that the researchers I spoke to had a good understanding of how the families felt and responded to involvement in the study. As the study gained credibility from the community, there was less anxiety about committing to the project or apprehension regarding what this involved. Cooperation improved following clear explanation of the benefits of the study to the family and child, in particular the promise of specialist services and consultant care appeared to be very important to families. • The study’s success relies a great deal on the dedication and interpersonal skills of the researchers and individuals leading the study; this factor shouldn’t be underestimated, and a robust system needs this element in future designs

  7. Continued • A key area of success has been the use of Aboriginal workers in the study, and the depth of appreciation and understanding they have had in regards to how the research be conducted, and how the community is actively involved • Following the difficulties with the project taking off initially, there was a shift in focus from a research point that was around ‘how to get data from Aboriginal groups’ to changing the approach of the study to encompass the indigenous world view. It took several years for this approach to be fully integrated into SEARCH. There was a shift in decision making and empowerment during this start up time. • The rules of engagement were developed and followed, with the four stages of inform, consult, involve and collaborate • The different sites involved in the study all have very different cultures, relationships and set ups. This is one of the strengths of the study as it allows ownership and some autonomy, thus reducing the ‘put upon’ effect that is often the failing point of many research studies. • High rates of continuation figures suggest the retention techniques of follow up regular calls and contact with the family are effective

  8. Next Steps • Linking up the sub studies to show their value and implications • Adjust recruitment methods to maximise future recruitment and resources according to highest success methods • Publicise widely why this has worked; not just in terms of cultural and community engagement but using health statistics and real costs saved through the project itself in terms of preventative savings • Targeting of remaining Aboriginal Medical Centres to come on board with SEARCH study

  9. My Learning • Importance of history, culture and collaboration in healthcare • The dedication of individuals on all levels of the project to ensure success • The importance of ‘soft’ skills • The disparities that exist in Australia, and the progress towards shifting these • The role that organisations such as The Sax play in the Healthcare System in Australia

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