TIPS Follow-Up: Assessing your Child’s Development after Discharge

1. TIPS Follow-Up: Assessing your Child’s Development after Discharge

2. Follow-Up Options Before your baby is discharged, your health care team will describe the type of follow-up that is best to monitor your baby’s development. There are three important things to know about your baby’s follow-up. 1: There are three follow-up options: • Developmental Screening: Follow-up through Parent Questionnaire • Developmental Screening/Assessment: Follow-up through Clinic Visit • Follow-up through Survey of Services Received 2. Follow-up occurs at the following ages: • 6, 18, 24 (corrected age) and 36 months 3. There is no cost to you and your family.

3. Follow-Up Options • Follow-up by Questionnaire • Follow-up by Clinic • Follow-Up by Survey of Services Received

4. What are we evaluating ateach follow-up time? Click on any of the links below to determine what we would be evaluating at each follow-up assessment. • Six months • Sixteen months • 24 months • 36 months

5. What are we evaluating at 6 months? Here are just a few areas… • Is your baby playing with toys by shaking, banging and mouthing? • Does your baby play in social games? • Does your baby look at pictures in books? • Is your baby rolling over and beginning to sit with support? • What sounds is your baby making? • How has your baby’s health been? • Do you have any concerns regarding your baby’s development?

6. What are we evaluating at 16 months? Here are just a few areas… • Does your baby put toys in and out of containers? • Does your baby follow simple directions and know their body parts? • Is your baby beginning to walk independently? • What words is your baby saying? • How has your baby’s health been? • Do you have any concerns regarding your baby’s development?

7. What are we evaluating at 24 months? Here are just a few areas… • Is your toddler climbing and running? • Is your toddler completing simple puzzles? • What words or phrases does you baby say? • Does your baby join in pretend play? • Does your baby point to pictures in books? • How has your baby’s health been? • Do you have any concerns regarding your baby’s development?

8. What are we evaluating at 36 months? Here are just a few areas… • Is your preschooler matching like objects, shapes and colors? • Is your preschooler jumping, hopping, and climbing? • Does your preschooler draw shapes? • Is your preschooler joining in pretend play (like playing house) with other children? • Does your preschooler talk in sentences of 3 to 5 words? • How has your baby’s health been? • Do you have any concerns regarding your baby’s development?

9. Follow-Up by Questionnaire • At the designated follow-up times, you will be sent the Ages and Stages Questionnaire. • It will ask you questions about your child’s development. • Just complete the questionnaire and return it in the self-enclosed envelope.

10. Two Additional Assessments • M-CHAT - An autism screener [at 16 and 24 months of age the TIPS team will send you two additional screeners. The M-CHAT will screen for autism] • CSBS - A communication screener [the CSBS will is a communication screening. These both will provide useful information to the team on your child’s development] • These parent-completed questionnaires will also be completed at 16 and 24 months of age.

11. Ages and Stages Questionnaire • Click on the image at right to open the Ages & Stages Questionnaire…

12. How will I know if my child is doing ok? • A developmental specialist will score the screening. If your child is doing well on the screener you will get a letter with the results.

13. What if my baby is not doing things like other children his/her age? • Sometimes there may be areas where your baby may not have some of the skills that may be expected based on your answers on the questionnaire. • What happens next? • A developmental specialist will call you to gather more information. • If you are still concerned: Your child can then be referred to the Early Developmental NetworkorEarly Accesswhere a more comprehensive assessment is completed OR We can schedule you to come to the nearest TIPS clinic for further assessment.

14. Parenting Resources • At each screening follow-up your family will receive a Just-In-Time Parenting Newsletter that will provide you with helpful parenting information.

15. Follow-Up by Developmental Screening

16. Participating Clinics - Omaha • Childrens Hospital & Medical Center8200 Dodge Street, North Tower 5th FloorOmaha, NE 68114Sandy Bennett - sbennett@childrensomaha.org • Methodist Women’s Hospital707 N. 190th PlazaOmaha, NE 68022Kathy Walburn (402) 815-7823kathy.walburn@nmhs.org • Munroe-Meyer Institute985450 Nebraska Medical CenterOmaha, NE 68022Joanie Dinsmore – jpdinsmo@unmc.edu

17. Participating Clinics - Lincoln St. Elizabeth Medical Center 555 South 70th St. Lincoln, NE 68510-2494 Connie Pabencpaben@stez.org / Nurserv@stez.org

18. Participating Clinics - Kearney • Kearney Clinic211 W. 33rd St.Kearney, NE 68847Carol Florang (402) 237-2141 cflorang@kearneyclinic.com

19. Participating Clinics - Scottsbluff • Regional West Medical Center3911 Avenue BScottsbluff, NE 69361Sue Krieg – kriegs@rwmc.net

20. Developmental Screening • During the clinic appointment a team will evaluate your baby using a screening or assessment tool. Each clinic may have different team members but generally all will have a developmental specialist, nurse, and developmental pediatrician.

21. What will happen at clinic? • An assessment will be completed by a team of specialists to see how your baby is developing. • Any questions that you have about your baby’s health and development will be discussed. • Watch the videotape segment to see a part of an assessment of a toddler in clinic.

22. Two Additional Assessments • M-CHAT- A autism screener [at 16 and 24 months of age the TIPS team will send you two additional screeners for you to complete and bring with you to the clinic. The M-CHAT will screen for autism] • CSBS - A communication screener [the CSBS is a communication screening]. These both will provide useful information to the team on your child’s development. • These parent-completed questionnaires will also be completed at 16 and 24 months of age.

23. What happens if the team and I have concerns about my child’s development? • The team will talk with you about possible resources in your community. For most children we would recommend a referral to the Early Developmental Network (Nebraska) or Early Access (Iowa).

24. Parent testimonial

25. Parenting Resources • At each screening follow-up your family will receive a Just-In-Time Parenting Newsletterthat will provide you with helpful parenting information.

26. Follow-Up Survey ofServices Received • Sometimes babies may need ongoing developmental intervention when they are discharged from the NICU. • These early intervention services are provided by all states. In Nebraska, the program is called Early Development Networkand in Iowa it is called Early Access. • For children referred for early intervention services, Developmental TIPS will send out a survey to gather information on the services your child is now receiving.

27. Help Us Help Your Child • The information that you send us helps us better understand the needs and outcomes of children who face unique challenges!

28. Parenting Resources • At each screening follow-up your family will receive a Just-In-Time Parenting Newsletter that will provide you with helpful parenting information.