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Health Literacy

Health Literacy. Finding Your Voice. Margery Pabst, MA Author, Speaker, Facilitator Life & Family Transitions Expert Winner, 2010 “Caregiver Friendly Award ”. Where are we?. Research Administration Focus on humanity, dignity, community, and collaboration. Finding Your Voice: The 3 Keys.

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Health Literacy

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  1. Health Literacy Finding Your Voice Margery Pabst, MA Author, Speaker, Facilitator Life & Family Transitions Expert Winner, 2010 “Caregiver Friendly Award”

  2. Where are we? ResearchAdministration Focus on humanity, dignity, community, and collaboration

  3. Finding Your Voice: The 3 Keys Knowledge Awareness Boundaries

  4. Self-Knowledge: Using Your Skills & Interest • Refocus on skills/interest • Discover new way to use skills / interest • Change expectations, not reduce them • Develop new meaning in “Third Stage” Purpose

  5. Journey of the ‘Third Stage’ Reflective Meditative Transformational

  6. “third Stage” – Critical to Our Health Sense of worth & emotional well being affect health

  7. Finding Your voice Knowledge Awareness Increasing perceivedboundaries

  8. Finding Your Voice: Awareness What skills are you using /not using? What interests are you pursuing / not pursuing? Do you have a purpose for your third stage?

  9. Finding your Voice: Practical Knowledge Know your medications

  10. Knowledge: Filling the Gap4 knowledge categories Safety & Security Communication & Engagement Health & Wellness Remote Healthcare Note: Think Internet 1999 – We are at this level in our knowledge & sophistication around health literacy

  11. Patient Advocacy for Yourself & Others • Buy a Notebook • Keep Medical Diary • Clinic Appointments • Dates of health events & descriptions Source: eCare Diary

  12. Tip: It is your right to have access to test results and the notes in your chart. Every hospital system has a variation on the protocol to obtaining your records, but hospital social workers and administrators will be able to provide this specific information

  13. The Patient as Leader Access the Internet Ask Questions Talk with other patients / caregivers Keep records

  14. The two Ironies • The greatest irony of illness is that when you are at your worst is EXACTLY WHEN you need to be at your best Your healthcare is only as good as the person standing in front of you

  15. Putting 3 Steps into Action: Medical Community How do you Slow Down or stop activity or conversation? How do you State Your Concerns and ask for clarity? How do you Propose Your Solution?

  16. Scenario 1 “I am willing to look at the option you are suggesting, but it is important for me to consider the more invasive treatments as a last resort. Can you tell me more about other options?”

  17. Scenario 2 “I am willing to consider what you are suggesting, but I don’t feel comfortable making a decision until I talk with my family. Can we set up another appointment to continue this conversation after I’ve had a chance to talk this over with them?”

  18. Scenario 3 “I’ve been experiencing pain without relief for too long. I don’t feel confident that what you are proposing will help me and I am getting discouraged. I would like to seek a second opinion before I go any further. Can you refer me for a second opinion?”

  19. It’s ok to C U S S C: “I am Concerned” U: “I am Uncomfortable” S: “I am Scared” S: “I think this is a Safety issue:

  20. "What The Doctor Missed"The Wall Street Journal, Tuesday, September 28, 2010 The Leading Factors Contributing to Error Failure of Judgment  79% Failure of Vigilance or Memory  59% Knowledge 48% Patient's Behavior  46% Handoffs to Other Staff  20% Which of these five factors do you have some influence over?

  21. Advocacy: 3 Types Medical Emotional Practical

  22. Patient portraits Analyze yourself & others Apply to health, legal, general family issues

  23. Patient Portraits – Are you… “The Compliance King or Queen”? “The Sensitive Patient?” “The Proactive Patient?” “The Alternative Patient?” “The Wide-Eyed Patient?” “The Bossy Patient?” “The Passive Patient?” “The Analytical Patient?”

  24. Patient Portraits – Are you… "Woe is me, but just do what you have to do" “The Compliance King or Queen”?

  25. Patient Portraits – Are you… "I like seeing all my friends and family.  They give me such support" “The Sensitive Patient?”

  26. Patient Portraits – Are you… "I want all the facts" “The Proactive Patient?”

  27. Patient Portraits – Are you… "I want all the options and then I'll keep hunting for more information from all sources" “The Alternative Patient?”

  28. Patient Portraits – Are you… "My, what is this machine they've brought in?  What does it do?" “The Wide-eyed Patient?”

  29. Patient Portraits – Are you… "I want my breakfast precisely at 8, my lunch at 12, and my dinner at 6.  And, get me some water NOW" “The Bossy Patient?”

  30. Patient Portraits – Are you… "I trust you totally because you have all the information" “The Passive Patient?”

  31. Patient Portraits – Are you… "I like comparing all the data from the internet combined with what the doctor said.  In fact, I made a spreadsheet" “The Analytical Patient?”

  32. The Platinum RulevsThe Golden Rule

  33. Patient Portraits – Are you… “The Compliance King or Queen”? “The Sensitive Patient?” “The Proactive Patient?” “The Alternative Patient?” “The Wide-Eyed Patient?” “The Bossy Patient?” “The Passive Patient?” “The Analytical Patient?”

  34. The Tornado Advocate

  35. The Knowledge Well Advocate

  36. The Emotional Support Advocate

  37. The Nuts & bolts Advocate

  38. The Record Keeper Advocate

  39. References The Third Chapter. Lightfoot GilbertGuide.com (local directories for personal care services, long distances care management and money management) www.asaging.orgClick on “Visit the ASA Learning Communities” eCareDiary.com

  40. About Me Margery Pabst holds the M.A. in English from the University of Wisconsin, Madison. Her career has spanned both the public and private sectors as a writer, facilitator, and consultant. Margery led 500 language arts instructors in the Norfolk [VA] Schools, won top sales honors at Development Dimensions International, and served as Vice President of HBJ Leadership. She founded MLP Enterprises in 1988 and specialized in writing and facilitating leadership curriculum for Fortune 100 companies. Margery is the author of Team Speak™, a presentation skills program, and three e-books on life transitions. In the past few years, she experienced the intensely emotional role of caregiving firsthand. Enrich Your Caregiving Journey is the result of that experience, one that Margery views as holding potential for great personal growth. For more information about Margery email her at pivotalcrossings@aol.com. To order her book, “Enrich Your Caregiving Journey” visit www.PivotalCrossings.com.

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