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NCHS and Public Health Data Standards. Centers for Disease Control and Prevention National Center for Health Statistics. Mission of CDC’s National Center for Health Statistics:.
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NCHS and Public Health Data Standards Centers for Disease Control and Prevention National Center for Health Statistics
Mission of CDC’s National Center for Health Statistics: “NCHS monitors the nation’s health, providing statistical information that will guide actions and policies to improve the health of the American people.”
NCHS and PHDSC • Long history of involvement in development and implementation of data standards • Early supporter of PHDSC; housed initial organization • Founding member of PHDSC • Current collaborative projects • Web-based Resource Center • Health Care Service: Data Reporting Guide
Vision for 21st Century Health Statistics Influences on the Population's Health Place & Time Context Community Attributes Social Biological Characteristics Natural Environment Built Environment The Population’s Health Level Distribution Health Services Disease Functioning Well-being Cultural Context Economic Population-based Health Programs Collective Lifestyles and Health Practices Political Context
Enterprise-wide planning Broad collaboration Protection of privacy, confidentiality and security Flexibility to address emerging data needs Use of data standards Sufficient detail at all levels Timely production Integrated and streamlined data collection Appropriate access and ease of use Continuous evaluation Vision for health statistics enterprise: ten guiding principles
Major NCHS Data Systems • National Vital Statistics System • National Survey of Family Growth • National Health Interview Survey • National Health Care Survey • National Health and Nutrition Examination Survey • State and Local Area Integrated Telephone Survey
National Vital Statistics System • 57 reporting areas • Decentralized • US historical development-self-governing States • Nothing on registration in US Constitution • Responsibility based in state law • Responsibility with provider of services
Vital Statistics • Core of our health data system • Base for public health, social science, economic planning and program development • Monitor key indicators of health world-wide • Track progress to goals • Identify disparities • Alert to emerging problems
Promoting Consistency and Uniformity • Model State Vital Statistics Act and Regulations • Standard Certificates and Reports – standardized worksheets • Training materials – handbooks, videos, instruction manuals • Technical assistance – ICD 10 • Software – ACME, MICAR, etc…
Future for Vital Statistics Revised Birth Certificate Revised Death Certificate
Re-engineering Vital Statistics • Automation of records at the source • Flexibility to revise rapidly, address new data needs • Speed the flow of data • Implemented by states along with new standard certificates • Protocols and standards
Vital Statistics Messaging Project • To establish standardized messaging for vital events consistent with PHIN • Joint project – PHDSC, NAPHSIS, State representatives, CDC, and NCHS • Recognizes value of including vital statistics with its strong state-based system in PHIN • Next step: Identify state partners for testing and development
Major NCHS Data Systems • National Vital Statistics System • National Survey of Family Growth • National Health Interview Survey • National Health Care Survey • National Health and Nutrition Examination Survey • State and Local Area Integrated Telephone Survey
Standardizing data from multiple sources • Medical records from doctors’ offices, inpatient and outpatient hospital care • Facility questionnaires • CAPI interviews in the home • Clinical and laboratory tests • Medical examination findings
International Standards Setting • WHO’s Family of International Classifications • International Classification of Diseases • International Classification of Functioning and Disabilities • Summary health measures • Interview and examination survey methodologies • International Collaborative Efforts • Injury • Automated Mortality Coding
NCHS support for WHO standards in mortality coding • NCHS developed automated coding system for mortality data, based on ICD • Distributes software at no charge • Offers international ICD coder training course at RTP • NCHS’s ICE on Automation promotes automated system via meetings, symposiums • Automation seminar for Eastern European nations in June 2004
Conference Format • Theme: Data for the Public • Workshop Sessions ( 1 ½ hours) • Overview of Programs • In-depth Program Analysis • Cross-Cutting Issues, such as Data Standards • Hands-On • Exhibits – NCHS, CDC and vendors • Focus groups
Conference Registration 2004 Invitation: to be mailed soon and will be available also on-line