“ Palliative Care: Education And Sensitization” Presenter Karen Frank RN

1. “Palliative Care: Education And Sensitization”PresenterKaren Frank RN

2. Objectives • Define Palliative Care • Highlight the needs and concerns of palliative care patients • Recommend ways to improve the quality of life of patients requiring palliative care

3. Definition of Palliative Care • Improves quality of life • Associated with life-threatening illness • Prevents and relieves suffering

4. Definition Cont’d • Pain and other distressing symptoms e.g. fatigue, nausea • Affirms life and regards dying as a normal process • Neither hastens nor postpones death

5. Definition Cont’d • Integrates psychological, spiritual and social aspects of care • Help patients live as actively as possible until death • Assist family to cope with the illness and bereavement

6. The Big Question How can we ensure that our patients and their families enjoy the best quality of life?

7. Domains of Palliative Care http://www.capc.org/capc-resources/capc-poster-sessions/capc-phoenix-2010/abstracts/posters/04-full.jpg

8. Synopsis of the Case Ms Wong a 50 year old domesticworker was diagnosed with metastatic breast cancer. At present she lives with her elderly mother and her three teenage children while desperately trying to finish an apartment of her own. Upon diagnosis she likens the action of a health professional to a dagger in her heart.

9. Analysis of Case Study Structure and Process of Care • “They did rounds and rounds on me”. • “Three weeks in hospital then they just push me over to the oncology doctor”. • “Smooth off the roughage which made me feel like somebody cared”

10. Analysis of Case Study Cont’d Physical Aspects of Care • Admitted in pain, biopsy pending • Coped by crying and praying • Relief measures not attempted as cause of pain unknown

11. Analysis of Case Study Cont’d Psychological and Psychiatric Aspects of Care • Like a dagger in her heart • “The thing had me so upside down”

12. Analysis of Case Study Cont’d Social Aspects of Care • “Is pay cheque to pay cheque I living” • Unable to provide for her family

13. Analysis of Case Study Cont’d Spiritual, Religious and Existential Domains • “I just don’t know how to face it” • Don’t know how to tell her family • Everyone has to die

14. Analysis of Case Study Cont’d Cultural Aspects of Care • Cancer is a death sentence in our society • Her children will have to finish their home.

15. Analysis of Case Study Cont’d Care of the Imminently Dying • Conversation about death and dying • The physical symptoms and emotional burden

16. Analysis of Case Study Cont’d Ethical and Legal Aspects of Care • Duty of care • Mental capacity • Advanced care planning

17. Ms Wong’s Poinsettia

18. My Palliative Care Motto Using a team approach, palliative careis doing unto patients what you would like done unto you if you were in the patients’ situation.

19. References • Sepúlveda, C., Marlin, A., Yoshida, T. & Ullrich, A. (2002) Palliative care: The world health organization’s global perspective. Journal of Pain and Symptom Management 24 (2), pp. 91-96. • Center to Advance Palliative Care (2013) Eight domains: eight opportunities. Available at: http://www.capc.org/capc-resources/capc-poster-sessions/capc-phoenix-2010/abstracts/04 (Assessed 01 May 2013)

20. Thank you for your interest and participation