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NESSTAR and Eastern Public Health Observatory (erpho). Julian Flowers. Outline. What PHOs do Where does NESSTAR fit in? Implementing NESSTAR in PHOs – issues Where next…?. PHOs. Regional bodies – NHS/DH funded
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NESSTAR and Eastern Public Health Observatory (erpho) Julian Flowers
Outline • What PHOs do • Where does NESSTAR fit in? • Implementing NESSTAR in PHOs – issues • Where next…?
PHOs • Regional bodies – NHS/DH funded • Serve public health community by improving access to data/ information/ expertise • Cataloguing data sources => metadata • Informatics = languages/ controlled vocabulary/ taxonomy etc… • Interoperability = eGMS/ standards • Data production/ secondary analysis • Reports • Education and training
Who are our users? • Primarily • Ourselves • Information analysts in PCTs/ SHAs etc • Directors of Public Health and their teams • Secondarily • Other health staff • Non-NHS • Academics • DH • The public….
erpho and data • Trying to improve access to routinely available data • Initially developed website as a catalogue of datasets i.e. database of metadata • => signposting function • Access to microdata from a variety of sources =>Increasingly asked to provide data and analysis • Need tools to improve both access to and accessibility of information
NESSTAR – why we chose it • Ability to publish micro-data AND cubes • Ability to handle large datasets • User friendly interface • Metadata • Searching within the server e.g. for variables – makes analyses much easier => Improves both access and accessibility of datasets
Implementation • Customisation • Bespoke version of server • Linked in to PHORMS – PHO website for • Resource discovery • Studies and variables published on server searchable through the website • Access control • Uses an authentication service for “one-stop” password and user ID control • Used PHITS catalogue • Data preparation • Training
What is published where • Use specialist catalogue for health data • Publish data from a variety of sources • Republish routinely available data from national bodies • PHOs have access to record level data • Publish analyses of hospital activity, mortality etc. • Also anonymised extracts of datasets for selected users
Issues • Disclosure and disclosure management • Access control = needs to vary by user and by dataset • Data in public domain should be unrestricted • Data not in public domain but publishable should be unrestricted (FOI) • Data not in public domain but not routinely publishable should have restricted access, disclosure control… • Access control = how?
Issues (2) • Catalogue flexibility • Searching through the web vs. searching on the server • URLs • Speed • Complexity of some of the variables • Data preparation • Cubes versus “studies” – can do different things with each and may need to publish in both forms…
Where next? • Revamping links between server and website • Revamp health catalogue – needs to be more flexible • Retaining existing access control • ? Mapping • More user friendly interaction • Careful consideration of what we publish in what form to whom