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CFS/ME: OUT ON THE STREETS!

CFS/ME: OUT ON THE STREETS!. JOIN THE INTERNATIONAL CFS/ME PATIENTS’ MOVEMENT. This is our CFS/ME activism story from Barcelona, Spain.

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CFS/ME: OUT ON THE STREETS!

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  1. CFS/ME:OUTON THE STREETS! JOIN THE INTERNATIONAL CFS/ME PATIENTS’ MOVEMENT

  2. This is our CFS/ME activismstory from Barcelona, Spain • In January 2006, the Autonomous Regional Goverment of Catalonia (population 6 million), Spain, put out a plan for patients with CFS/ME or Fibromialgia (FM) that would force us to only access Primary Health Care and keep us from seeing specialists (this added to the fact that there is only one CFS Unit in Spain with a 2 year waiting list).

  3. Why did the goverment do this? • Simple enough: they knew that, as PHC doctors are not trained to diagnose and treat CFS/ME or FM, their reports would be useless to allow us to apply for a disability pension. (They think we can live on nothing.) This would put us both in a legal and health care services’ LIMBO. Which is why we, the patients, called this goverment plan…

  4. THE GUANTANAMO PLAN

  5. As we felt trapped like Guantanamo prisoners, we decided to make orange ourcolour

  6. We hit the streets any way we could: wheelchairs, canes, chartered buses…

  7. We gathered in front of the Health Department with our signs and our whistles.

  8. Of course, not all of us did make it there… “I represent 4 people, the other 3 are in bed.”

  9. We drew bodies and wrote in them the number of people with CFS thatwere not able to get out of bed

  10. For some, it was too late… “In memory of those with CFS who have committed suicide”.

  11. The goverment officials came out to try to “reason” with us. But THEY lacked reason.

  12. We even got support from far away: Dr.Nancy Klimas, president of the IACFS

  13. After that we spent a month in bed. But it was worth it!

  14. We made all the national press! • Tell us what you are doing in your area for CFS-ME rights. Let’s join our forces together! www.ligasfc.org info@ligasfc.org (Barcelona, Spain)

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