People With Usher Syndrome in Russia

1. People With Usher Syndromein Russia

2. Association of Deafblind People Social Support “Elvira” Usher-Forum. Organization which takes care of deafblind people and people with Usher Syndrome Magazine “Vash Sobesednik” (Your Companion) Creative Association “Circle” Deaf-Blind Support Foundation “So-edinenie” (Con-nection) Resource Center for the Deaf-Blind

3. Places • House for the Deaf-Blind in Puchkovo, Moscow region • Quiet House (Moscow region)

4. Organizations • ElviraCreated in 1992 • Usher-ForumCreated in 1998

5. Magazine Vash Sobesednik(Your Companion) • The Magazine was created in 2003 • It is made by deaf-blind people themselves • The Magazine is made in 2 formats: printed and Braille • It is distributed free of charge among deaf-blind people and organizations working with the deaf-blind • It is possible to make subscription by the Internet

6. Creative Assotiation “Circle” • Ceramic studio • Sale of products at fairs and events • Social apartment for living and gaining skills of independent living

7. Creative Assotiation “Circle”Social Apartment

8. Creative Association “Circle”

9. Deaf-Blind Support Foundation “So-edinenie” (Con-nection) • Created in 2014Foundation Programs • Informed Society • Education and Science • Regional Development • Social Integration

10. Resource Center for the Deaf-Blind • Consultative and Diagnostic Center-psychologist-teacher-defectologist-audiologist-psychiatrist • School for children with simultaneous visual and hearing impairment

11. Resource Center for the Deaf-Blind • Social and cultural integration of deaf-blind children-Holidays and master-classes for children from public schools and kindergartens-Summer School Integration Camp

12. Resource Center for the Deaf-Blind • Educational Center for Deaf-Blind Children and Teenagers-Social orientation-Labor training-Spatial orientation and mobility-Workshops (Ceramics, Carpentry, Mechanics)-Home Economics-Adaptive physical training

13. Resource Center for the Deaf-Blind • Recreational and Rehabilitation Center for Adults-Social and labor rehabilitation-Psychological and pedagogical support of the deaf-blind who lost sight and hearing in adulthood-Gaining training skills for promotion on fairs and in retail chains-Theater workshops-Learning how to work on a computer using Braille Display

14. Resource Center for the Deaf-Blind • Professional training of specialists for working with families who have deaf-blind members • Scientific and methodological activities aimed at promotion of education for the deaf-blind

15. House for the Deaf-Blind in Puchkovo • Training Courses-Computer-Braille-Individual rehabilitation-Socio-cultural rehabilitation

16. House for the Deaf-Blind in Puchkovo • Social adaptation and spatial orientation • Skills of proper cane usage • Training on locating obstacles • Methods of buildings and premises inspection

17. House for the Deaf-Blind in Puchkovo • Tactilemethods in spatial orientation • Domestic skills • Self-service • Hygienic skills • Cooking and food culture skills

18. House for the Deaf-Blind in Puchkovo • Methods for choosing clothes and taking care of yourself • Skills of keeping order in living space • Skills of proper behavior and being polite • Cultural activities (excursions, etc.) • Creative and occupational therapy

19. House for the Deaf-BlindQuiet House • Joint activities and communication • Rooms for 1 or 2 people

20. House for the Deaf-BlindQuiet House • Cooking skills • Labor skills and employment (e.g. making candles)

21. Websites • Association of Deafblind People Social Support “Elvira” http://www.domsg.ru/ • Usher-Forum. Organization which takes care of deafblind people and people with Usher Syndrome http://www.notabene.ru/usher/indexru.html • Magazine “VashSobesednik” (Your Companion) http://vash-sobesednik.ru/ • Deaf-Blind Support Foundation “So-edinenie” (Con-nection) http://so-edinenie.org/en/

22. Thank you very much!