Macmillan Health and Wellbeing Clinics

1. Macmillan Health and Wellbeing Clinics Stephen Hindle Macmillan Survivorship Programme Lead

2. What are Macmillan H&WB Clinics? • ‘One-stop-shops’ providing information and support to help patients and carers to prepare for the transition after treatment • Aims to increase health and well being through support with: lifestyle management, managing your cancer, potential signs and symptoms, and how to get help • Volunteers play key roles in supporting clinics

3. Key findings of 15 pilots 2010/11 • Increased patient knowledge and confidence • reported reduced anxiety and greater empowerment • more appropriate use of services • earlier intervention – may link to improved outcomes • ‘One-stop shop’ enabled access to services • reassurance of knowing support there in case of future need • Patients valued volunteers • Created relaxed atmosphere - put patients at ease • Providing information and signposting, explaining in simple terms, offering empathy & understanding • Volunteers’ personal experience of cancer gave encouragement to patients about their future

4. Success Factors • Tailored approach to target audience for recruitment, delivery and environment • Information about HWB and what services patients can access • Successful processes for recruitment / attendance inc. • Event integrated in pathway (93% invited to Barts clinic attended ) • Booking systems which require patients to book appointment • Consultant referral; • Confirmation letters/phone calls • Volunteer Support & Role • Targeting BME groups in partnership with community organisations

5. How to set up a Macmillan Health and Well Being Clinic • Review evaluation material • Engage MDT and Medical lead • Agree survivorship pathway • Agree case of need • Agree operational policy (include awareness raising/marketing) • Decide content • Set up steering group to monitor project • Lots of help on LearnZone!

6. Health and wellbeing clinic component options Awareness & Engagement Community & patient / Third sector MDT via attendance at NSSGs / Primary care / HWB Integrated in cancer care pathways Training packages for Staff /Volunteers Pre HWB Assessment HNA undertaken Pre HWB questionnaire from patients/carers to shape event Referral Mechanisms, inc. self referral, booking, confirmation Administrative Support (paid/voluntary) Pre HWB Inputs

7. Health and wellbeing clinic component options • Processes • Tracker system • Intervention • HNA and care plan (supported by volunteer) • Self management tool and techniques, folder & action plan • Exercises eg Relaxation techniques • Communication Models • Presentations / CDs/ video/ photo loops • Market stalls • One to one support / Group work/open discussions • Music/song/dance/drama • Information Giving • Health and wellbeing messages and services to access • Information leaflets • Volunteer navigated support and signposting HWB Clinic Event

8. Health and wellbeing clinic component options • Documentation • Letter to GP, copy to patient and action in notes • Follow up card with contacts, signs/symptoms of recurrence • Action plan revisited at agreed time • Post clinic evaluation and targeted support eg Belfast/Leeds model • Buddy Support Programme • Patient referred to peer support programme where exist • Timely Referral & Access to Other Services • Third sector eg Sister to Sister group Leeds • Dedicated programmes eg fatigue management • Information • Information pack/health and wellbeing booklets/rehab folder HWB Outputs

9. Why do Health and Wellbeing Clinics work? Health and Wellbeing Clinics help people to take control by: • Focusing on an individual’s role in maximising their own quality of life • Enabling attendees to find out more about what matters to them • Supporting an holistic approach by involving a wide range of support services • Acting as a springboard for continuing activity Aiming to increase self-efficacy

10. What is self-efficacy? • ‘Confidence in the power to ‘master’ the environment influences active participation in health enhancing behaviours’ (Lev, 1992) • Your belief in your ability to make a difference to your life Four methods used for enhancing self efficacy: • ‘Mastery’ experiences – actual skills performance • ‘Vicarious’ experience – seeing others succeed • Verbal /social persuasion – positive feedback; suggestion; self instructed performance • Physiological feedback – emotional arousal

11. How can Macmillan help you? – Getting Back in the Driving Seat/Taking Charge resource • Providing focus for person to think about what matters to them • Gives physical space where important issues can be recorded & reflected upon

12. Contents of Taking Charge • Introduction about self management • Tips to support self management • Useful information • Prompts for consideration of issues affecting health & wellbeing • Plan for action to help move forward - focus on: • motivation for change • action to be taken • desired result • plan for setbacks • reward for achievement • utilising available support

13. Taking Charge – supporting people to self manage

14. How can Macmillan help you? – Getting the Right Messages Across presentation • Underpins aim of Health and Wellbeing Clinics to enable attendees to manage day-to-day issues as independently as possible. • Customise with local information and images & order different silhouettes at be.macmillan.org.uk • Additional information for presenters in notes • Can be used as training resource as well as in clinics

15. How can Macmillan help you? – Learn Zone • learnzone.macmillan.org.uk Contains all information about Macmillan’s face-to-face L&D and e-learning offer for PABC, volunteers, health and social care professionals and Macmillan staff (need to register) • Health and Wellbeing Clinics section: • Click on ‘Special Interest Groups’ on top left side of home page • Select ‘Health and Wellbeing Clinic’ from list of groups • Presentations and Resources section – Setting Up A Clinic

16. Contact us at Macmillan • setting up a Health and Wellbeing Clinic: • Fay Scullion 07834 192222 fscullion@macmillan.org.uk • Jane Rudge 07834 191245 jrudge@macmillan.org.uk • self management support training for volunteers and resources • Suma Surendranath 020 7840 4982 ssurendranath@macmillan.org.uk • Stephen Hindle 020 7091 2045 shindle@macmillan.org.uk