Public Health Data Standards Consortium

1. Public Health Data Standards Consortium Health Level Seven (HL7) January GOV SIG San Diego, CA January 2002 Michelle Williamson National Center for Health Statistics Centers for Disease Control and Prevention

2. Public Health Data StandardsConsortium (PHDSC) • Outgrowth of consensus recommendation at November 1998 “Workshop on Implications of HIPAA for Public Health and Health Services Research” • The PHDSC mission is to improve the health and health care of the U.S. population through improved health related information by expanding involvement in existing health data standards and content organizations and determining standards needs through consultation with data leaders and data users.

3. Who Is the Public Health Data Standards Consortium Today? A coalition of 32 organizations committed to the promotion of data standards for public health and health services research • Federal agencies (CDC, AHRQ, CMS, HRSA,SAMHSA) • State agencies and regional consortia (NY, NE, WI, WA, CA, MA, MHDC, MHDI) • National professional associations (AHSRHP, AMCHP, ASTHO, APHL, CSTE, NACCHO, NAPHSIS, NAHDO, NASMD, PHF, JCAHO, MHSIP, NASADAD, NASHP, NALBOH, STIPDA, WGCBHHS)

4. Who is the Public Health Data Standards Consortium Today? Represents public health and the health services research community in Standards Development Organizations • Health Level Seven (HL-7) • National Uniform Billing Committee (NUBC) • National Uniform Claim Committee (NUCC) • ANSI ASC X12

5. Consortium Progress Education Strategy Developed EDUCATION STRATEGY under contract with The Lewin Group and NAHDO in 2001, to: • Build partnerships/educate constituencies • Participate in development of national standards • Support implementation of standards • Steering Committee prioritized strategies

6. Consortium Progress Education Strategy Priorities • Create a public health implementation guide for selected national standards as they relate to public health • Develop a web-based resource center to track data integration and standards development efforts relevant to public health and health services research • Secure Funding for Consortium initiatives • Action plan for Overcoming Barriers to migrating to national standards

7. Consortium Progress Education Strategy Priorities Strategic Planning Meeting July 2001 Provide guidance to new work groups established at the Consortium’s March 2001 Steering Committee Meeting as part of its overall effort to implement the Consortium’s new education strategy

8. Consortium Progress Education Strategy Priorities Health Care Service Data Reporting Implementation Guide Work Group • Chair: Robert Davis, New York Department of Health -Statewide Planning and Research Cooperative System • Provide a standardized format for reporting health care service data compatible, but not compliant with HIPAA standards • Approved proposal to develop ANSI ASC X12 837 Health Care Service Data Reporting Guide – June 2001 • Present Draft 2 of Guide to X12 TG2WG2 – Feb. 2002

9. Consortium Progress Education Strategy Priorities Web-based Resource Center Work Group • Chair: Tom Doremus, Public Health Foundation • Focused on the conceptual development of an Internet-based resource center to track standards development, implementation and data integration. • Developed a Health Data Standards Survey to obtain feedback from the public health and health services research community to create a resource to address the needs for educational material on health data standards issues: http://www.cbay.tv

10. Consortium Progress Education Strategy Priorities Business Development and Marketing Work Group • Co-chairs: Elliot Stone, Massachusetts Health Data Consortium Walter Suarez, Minnesota Health Data Institute • First Conference Call – December 17, 2001 • Purpose is to develop a business plan for the Consortium to support work group activities while promoting the Consortium’s mission and objectives.

11. Consortium Progress Education Strategy Priorities Overcoming Barriers/Strategic Planning Work Group • Chair: Delton Atkinson, National Association for Public Health Statistics and Information Systems • First Conference Call – January 22, 2001 • This group is charged with developing strategies to overcome barriers to migrating to national standards

12. Consortium Communication • Web site:http://www.cdc.gov/nchs/otheract/phdsc/phdsc.htm • Listserv: Send e-mail to: LISTSERV@LIST.NIH.GOV In the message body enter: SUBSCRIBE PH-CONSORTIUM-L YOUR NAME • Contacts: • Marjorie Greenberg : msg1@cdc.gov or 301-458-4245 • Suzie Burke-Bebee: zxj6@cdc.gov or 301-458-4125 • Michelle Williamson: zup9@cdc.gov or 301-458-4618