Translating vision and strategies into the real world: community perspective

1. Translating vision and strategies into the real world: community perspective Lihle Dlamini (Treatment Action Campaign, South Africa)

2. Introduction • Civil society organisation • 10 December 1998 (Human Rights day) • SA based in 7/9 provinces with over 53 Accredited branches (Support groups) • Programmes-PTL, CHA and PCR

3. Strategies used: • Policy, communications and research • Treatment literacy • Community mobilisation • Media • Demonstrations (pickets, night vigils, marches, sit-ins) • Litigation

4. How we do Treatment Literacy • Taking science into communities and support groups • HIV lifecycle • ART regimens, benefits and side effects • Preventions • Community education • Drug laws • Trips and patents • Drug pricing- generics • Fixed dose combinations

5. Treatment Literacy training workshops

6. Community mobilisation • Education • Support groups • Churches • Faith based organisation • Traditional healers • NGOs • Schools • Clinics Door to door, ET and pamphlet distribution • Partnerships • Clinics (clinic committees) • Civil society organisations • Traditional leaders • Media • Ward councillors • AIDS councils • Researchers • Health care workers

7. Community mobilisation

8. Studying the law • South African constitution sec 27: Health care, food, water and social security • Everyone has the right to have access to- • Health care services, including reproductivehealth care; • Sufficient food and water, and • Social security, including, if they are unable to support themselves and their dependants, appropriate social assistance • The state must take reasonable legislative and other measures, within its available resources, to achieve the progressive realization of each of these rights; and • No one may be refused emergency medical treatment.

9. Studying the law cont… • National Health Act • Promotion of Administrative Justice Act (PAJA) • Public Finance Management Act (PFMA) • Promotion of Access to Information Act (PAIA) • Patent Laws

10. Fighting denialism and false cures

11. PLHIV Demanding access • Closer health care facilities • Access to ART e.g. PMTCT/ Rx plan • Policy engagement – SANAC • Rx for OIs e.g. Fluconazole-Amphotericin B • Reproductive health rights • HPTN 052 study results • Early treatment • Importance of adherence

12. Challenging Pharmaceutical companies

13. challenging our government

14. challenging our government

15. Policy communications and research • Equal treatment • District newsletters • Letters to individuals, departments and companies • Petitions • Outside electronic and print media • South African National AIDS Council - NSP

16. litigating • PMTCT case • Annexure A of the Rx plan • Westville inmates • SASFU- Defence force • Rath case

17. litigating

18. Results • Adherence • Prolonged lives • Healthy lifestyles- “back to work” • Knowing PLHIV and health rights • Reduced drug prices • Generic drug production • Change in political will (Zuma & Motsoaledi) • Addressing the health systems • National strategic plan • 1.4 million people on ART • 12 million tested in 1 yr (i.4 mil +)

20. The results

21. acknowledgements • Partners • Researchers • Health care workers • Funders • TAC staff • Media • TAC Volunteers

22. But still … • Better Rx regimens and FDC • TB/HIV integration • Early treatment • Combating stigma • Supporting recently diagnosed people • Role in prevention • Funding • Challenge the EU trade laws

23. But still … global fund

24. Thank you…