NLM Update: Disaster Information Management Research Center (DIMRC)

1. NLM Update:Disaster Information Management Research Center (DIMRC) Stacey J. Arnesen Head, Office of DIMRC Specialized Information Services Division arneses@mail.nih.gov May 19, 2009

2. Overview Disaster Information Management Research Center Background Mission and objectives Programs and projects Partnerships

3. Why is NLM Involved in Federal Disaster Preparedness and Response? Maintaining access to information in a disaster is critical Sustaining information technology networks in a disaster is critical NLM is the best equipped Federal agency to serve as the primary portal for disaster health information

4. NLM Long-Range Plan 2006-2016 • NLM will : • Be a partner in Federal disaster preparedness and recovery • Demonstrate how medical libraries and librarians can provide critical disaster information services • Ensure access to health information and effective use of libraries/librarians in disasters • Establish a Disaster Information Management Research Center (DIMRC)

5. DIMRC OBJECTIVES • Maintain library operations • Provide access to disaster health information • Develop information tools • Partnerships • Research and Development

6. http://disasterinfo.nlm.nih.gov Screen capture of the Disaster Information Management Research Center

7. Maintain Library Operations: NN/LM Emergency Preparedness • RML Back-Up Plans • RML Disaster Plans • NN/LM Emergency Preparedness and Response Toolkit (http://nnlm.gov/ep) • Enhance Go Local • Publishers Emergency Access Plan Go Local - Galveston

8. NLM Continuity of Operations Planning • Crisis Response Team Orientation Table-top exercise • NLM COOP Planning • Professional COOP planners to assist NLM and other area hospitals • What and who are “essential” ?

9. Provide access to information:Disaster Health Resources • Databases • PubMed; PMC • Resource Guide for Public Health Preparedness (NYAM) • TOXNET (HSDB, TOXLINE, TOXMAP, etc) • DIRLINE (State-level disaster organizations) • Tools • WISER • REMM • CHEMM (under development • Subject Guides/Pathfinders/Web Links • Enviro-Health Links on disaster topics • MedlinePlus disaster topicsand more…

10. Integrated Access to the Disaster Literature Clockwise: Picture of PubMed Search Results Page Picture of Cover of Hospital Guidelines for Pediatrics in Disasters Pediatric Disaster Toolkit Picture of Cover of Disaster Medicine and Public Health Preparedness Picture of CANDHI Reo Centroamericana De Informacion Sobre Desastres y Salud Picture of NNMC Disaster BookCollection Picture of Search results page of the Resource Guide for Public Health Preparedness NNMMC Library

11. Web Links on Disaster Topics Three graphics: MedlinePlus Banner Environmental Health and Toxicology banner Enviro-Health Links from Environmental Health and Toxicology 11

12. Disaster Information Specialist • Identify how to support emergency personnel with disaster information needs • Emerging role for medical librarians • Pilot sites: • New York University • National Naval Medical Center • Uniformed Services University • Sarasota Memorial Hospital • NIH Library

13. Disaster Information Specialist • Roles for librarians in providing information outreach to their communities for all-hazards preparedness, response, and recovery • Assess needs for a national training curriculum and certification program for librarians interested in providing disaster health information • DISASTR-OUTREACH Listserv with over 300 subscribers • Encourage development of library partnerships • Learning from experiences in disasters

14. Bethesda Medical LibrariesEmergency Preparedness Partnership Uniformed Services Univ of the Health Sciences Medical Library Stitt Medical Library National Naval Medical Center

15. Posters from MLA 2008, 2009

16. Development and Enhancement of Disaster Information Tools and Systems Screen Captures of web pages Clockwise: REMM Radiation Even Medical Management Environmental Health and Toxicology Enviro-Health Links - Chemical Warfare Agents WISER Wireless Information System for Emergency Responders CHEMM Chemical Hazards Emergency Medical Management

17. WISER Features Various WISER screen captures showing the features of WISER http://wiser.nlm.nih.gov

18. WISER Example of Map Protective Distance Data for Sarin

19. Radiation Event Medical Management (REMM) - http://remm.nlm.gov Mobile REMM for Blackberry, Windows Mobile and Palm OS

20. Partnerships • HHS/Assistant Secretary for Preparedness and Response • Bethesda Hospitals Emergency Preparedness Partnership • Bethesda Medical Libraries Emergency Preparedness Partnership • Central American Network for Disaster Health Information • Department of Transportation • Institute of Medicine Forum on Public Health Preparedness for Catastrophic Events • NIH Library and Clinical Center • New York University • Sarasota Memorial Hospital • Uniformed Services University • Disaster Info Specialists and interested librarians from over ???states and ?? countries …

21. The Bethesda Hospitals’ Emergency Preparedness Partnership (BHEPP) In 2004 three hospital leaders recognized great vulnerability of Bethesda area to extreme patient surge in event of major disaster in National Capital Area First military-federal-civilian hospital preparedness partnership in the U.S. NLM later joined the partnership to conduct research and development to: Strengthen communications interoperability Maintain information access during disaster Support responder training & education 21

22. Hospital Disaster Experience Hospital Bombing Mosdok, Russia (2003) 50 dead, 64 hospitalized • Truck rammed hospital gate • 1 ton of TNT collapsed building with 135 people inside Tornado Strike Sumter Regional Hospital Americus, Georgia (2007) • Tornado struck hospital • Entire facility evacuated Tropical Storm Allison Flood Texas Medical Center Houston, Texas (2001) • 38” rain in 3 days • All hospital systems failed • Phones and some wireless systems failed

23. What Happens in Hospitals During a Disaster? • Increased demand for care • Increased demand for information • Communications problems • System disruptions • Lack of critical resources • People are asked to do things they don’t customarily do …and hospitals are expected to continue to function and meet the needs of the community!

24. Disaster Research and Development Initiatives Patient Management • Digital Pen • Patient Data Exchange • Patient RFID Tracking Communications • Laser Back-up • Dark Fiber Back-up • MARS Radio Back-up • Wireless Voice Bridge Family Reunification • Lost Person Finder Information Access • SureScripts/ RxHub Prescription Drug Access • Disaster Information Specialist Responder Training • Virtual World Disaster Training

25. Research and Development • Bethesda Hospitals Emergency Preparedness Partnership Research Projects • Disaster Informatics Research Grants • Scalable Information Infrastructure research projects

26. DIMRC Summary • Lead federal efforts to identify and make accessible the broad range of disaster health information • Identify and implement best practices for maintaining access to health information before, during, and after disasters • Develop innovative products and services to support emergency preparedness, response, and recovery activities • Conduct research to support disaster health information management

27. 27 27 Conclusion U.S. Government Portal to provide tools, literature, and research methods to assist with disaster preparedness, response, and recovery GOAL To Deliver “Just What I Need” Information, “Just in Time”