180 likes | 270 Views
Learn about palliative care, hospice, and support services at Stanford, with insights from medical studies and evolving practices. Discover the importance of end-of-life discussions and the need for better communication in healthcare settings. Explore success models and public demand for expert palliative care.
E N D
PALLIATIVE CARE AT STANFORD James Hallenbeck, MD Medical Director, Stanford Hospice, VA Hospice Care Center
Definitions • Palliative Care • Palliative Medicine • Hospice • Supportive Care
The Need • SUPPORT Study • Studies on Communication • Stanford Study
SUPPORT STUDY 1995 N= 9105 • 46% of DNR orders written with 2 days of death • 40% of patients/surrogates had discussed CPR with physician • Of 60% who had not done so, 41% wanted to • ~ 50% wanted a DNR status, but did have it • 50% of patients reported as being in 7/10 or greater pain in last three days of life SUPPORT JAMA 1995; 274:1591-1598.
Tulsky Study on Advance Directive Discussions • Conversations averaged 5.6 minutes • Physicians spoke 66% of the time • Used vague language • Patients values rarely explored Tulsky JA et. al. Opening the black box: how do physicians communicate about advance directives? Ann Intern Med 1998 Sep 15;129(6):441-9.
Stanford Survey 1998 617 Stanford Clinicians, 35 families • Staff and families identified communication as the area most needing improvement • 35% of staff felt inexperienced communicating with dying patients and families (residents 64%) • Broad support for a consultation team • 61% of physicians surveyed felt that a consultation team would be moderately or extremely helpful • 47% of attendings, 64% of residents stated that they would often or always use a consultation team in care of dying pts
Stanford- What We Do Not Know... Site-specific data • Annual # of hospital deaths by age, insurance status • COD and LOS by DRG, Location of death • In most hospitals LOS for patients who die in hospital 2-3 X for those discharged alive • Cost per case by DRG for deceased vs. alive • Audits of quality of symptom relief, documentation of patient preferences
The Context New Policy and Regulatory Mandates... • JCAHO • ABIM • AAMC • ACGME
Palliative Medicine Evolving as a Medical Subspecialty • American Board of Hospice and Palliative Medicine- > 600 physicians boarded since 1996 • A Push for ACGME Accreditation • Currently approximately 16 fellowships nationwide • VA Palo Alto HCS has 2 one-year fellows
Palliative Care Services being Integrated into Healthcare Systems • Consultation teams and/or dedicated beds more common • ~ 50% of California hospitals surveyed have or are planning dedicated services • VA Palo Alto HCS: 30 dedicated beds, consult team • UCSF: Comfort Care Suites, consult team • Santa Clara Valley Med: 2 dedicated beds, evolving consult team
Growing Public Demand for Expert Palliative Care • Bill Moyer’s September Public Television Special on Death and Dying in America Sept. 10-13 • Numerous associated events: • KQED f/u special on associated issues in the Bay Area • Community Action Groups • Community meeting at VA Palo Alto HCS on September 27, sponsored by community hospices
Models for Success • McGill University- Consult Service • Demonstrated average length of stay halved for terminally • Northwestern Memorial Hospital • Consult and inptatient service since 1994 • Average 55 consults a month • Followed for an average of 2 days (range 2-10) • Revenue 1.5 million in 1996, excluding donations exceeded direct costs of ~ 1 million
Models for Success • Oregon Health Sciences University Consult Service (of 67 serial consults) • 66% Cancer, 34% Non-cancer • 59% receiving life-prolonging treatment • 41% hospice/palliative care only • 20% died during hospitalization • Symptoms addressed: pain, nausea, constipation, delirium… • 65% received assistance in EOL care decision making Bascom PB. A hospital-based comfort care team: consultation for seriously ill and dying patients. Am J Hosp and Palliat Care. 1997
Models for Success • Philadelphia VA: Consult team for Cancer Patients (of 75 patients studied) • 164 medical problems identified • 31 patients inadequate pain relief • Other problems: skin care, oral care, nutrition nausea, constipation mental status • 15 patients referred for hospice- no documentation of wishes regarding resuscitation • 36 patients required psychosocial counseling
Philadephia VA Study • Of 22 patients followed in Medical Oncology Clinics: • 21 had one or more problems identified by consult team • Principally financial, social or spritual • 11 patients reported inadequate pain relief Abrahm JL et al. The impact of a hospice consultation team on the care of veterans with advanced cancer. J. Pain Symptom Manage. 1996; 12:23-31.
What are Our Choices? • Status Quo • Palliative Care geared to meet JCAHO minimum standards- a process of ‘quality improvement’ • A minimalist Palliative Care service • A comprehensive interdisciplinary palliative care consult team • A comprehensive Palliative Care service, bridging venues of care
From Consult Team to Palliative Care Service • Establish an interdisciplinary consult team • Attendings, fellow, elective resident/students, nurse, social worker, chaplain • Coordinate with others working in related areas • Stanford Hospice, Pain Service, Pediatrics, Ethics Center, VA Hospice Care Center • Consider identifying dedicated beds, outpatient clinic in later years