Withholding & Withdrawing Life-Sustaining Treatment

1. Withholding & WithdrawingLife-Sustaining Treatment Philip J. Boyle, Ph.D. Vice President, Mission & Ethics

2. Goal • Explore major questions & theories of withholding & withdrawing • Review cases • Review Church teaching on: • Who decides in health care • Conditions for termination of life-sustaining treatment

3. Questions that must be asked • Who decides? • Informed Consent • Advance Directives • What is the basis for termination? • Quality of life? • Burden-Benefit ratio? • Futility • Can the institution cooperate?

4. Moral complexity • If there is disagreement with reason to forego, one might conclude we have the wrong decision-maker • If the right decision maker is identified, one might infer the institution has no choice

5. Case 1 • Terminal patient on vent that he wanted removed • Fred, MS, 56, married • Clear with MD about after 1 month • Conscious • Wife was against wean

6. WHO DECIDES? • AUTONOMY • Self determination • INFORMED CONSENT • PROXY CONSENT • Advance directives • Surrogate decision making

7. SELF-DETERMINATION • I get to determine my destiny • Why? • Fairness • Well-being • Idiosyncratic • Self-determination= image of God

8. SELF-DETERMINATION • Informed consent • Capacitated to make this decision • Information • Appreciative awareness • Free

9. Who decides? • Autonomy/ self-determination • Informed consent • Capacity presumed • Advance directives Certain   less certain   know nothing “Clear and convincing” evidence

10. ADVANCE DIRECTIVES • Certain • Treatment directives • Living wills • DNR • Health care proxy • LESS CERTAIN • Beliefs • Actions • Statements • KNOW NOTHING • Best interest • Reasonable person

11. Directive 24 • “In compliance with federal law, a Catholic health care institution will make available to patients information about their rights, under the laws of their state, to make an advance directive for their medical treatment. The institution, however, will not honor an advance directive that is contrary to Catholic teaching.

12. Case 1 • Disagreement whether Fred was the right decision maker • Disagreement whether wife was the right decision maker • Disagreement whether foregoing was permissible • Disagreement whether “terminal” sedation was killing

13. Killing v letting die • Inappropriate v. appropriate • Because the person requested • Quality of life • Futility (medical indications) • Burden/benefit ratio

14. Theories of termination • Autonomy/self determination • Cruzan: You can forgo life sustaining treatment even if you are not dying • Liberty rights = entitlement rights • Logical progression: PAS

15. Theories of termination • Quality of life • Common usage • QALYs • From whose perspective?

16. Theories of termination • Futility (medical indications) • What counts as futile? • From whose perspective? • Don’t ask don’t tell • Tell, but don’t ask • Tell & ask • Rejected by courts • Baby K • Gilgunn v. Mass. General

17. History Pius XII “The Prolongation of Life” 1958 • “Normally one is held to use only ordinary means—according to the circumstances, places, times, culture—that is to say means that do not involve and grave burden for one self or others. A more strict obligations would be too burdensome for most people and would render the attainment of a higher more important good too difficult. Life, health and all temporal activities are subordinated to spiritual ends.” Appropriate v. inappropriate Extraordinary v. ordinary

18. History Declaration on Euthanasia CDF 1980 • “…people prefer to speak of proportionate and disproportionate”…it will be possible to make a correct judgment by studying the type of treatment, its degree of complexity of risk, costs and possibility of using it, and comparing these to the results to be expected taking into account the state of the sick person, and his or her physical and moral resources.” Appropriate v. inappropriate termination Disproportionate v. proportionate

19. Directive 28 • “The free and informed judgment made by a competent adult patient concerning the use or withdrawal of life-sustaining procedures should always be respected and normally complied with, unless it is contrary to Catholic moral teaching.”

20. Disproportionate • Excessively burdensome • Too painful • Too damaging to the patient’s self & functioning • Too psychologically repugnant to the patient • Too suppressive of mental life • Prohibitive cost • Burdensome to whom? • Patient • Family • Community

21. Directive 56 • “A person has a moral obligation to use ordinary or proportionate means of preserving his or her life. Proportionate means are those that in the judgment of the patient offer a reasonable hope of benefit and do not entail an excessive burden or impose excessive expense on the family or the community.” Appropriate v. inappropriate ordinary

22. Directive 57 • “A person may forgo extraordinary or disproportionate means of preserving life. Disproportionate means are those that in the patient's judgment do not offer a reasonable hope of benefit or entail an excessive burden, or impose excessive expense on the family or the community.” Appropriate v. inappropriate extraordinary v. ordinary Disproportionate burden v benefit

23. Directive 60 • “Euthanasia is an action or omission that of itself or by intention causes death in order to alleviate suffering. Catholic health care institutions may never condone or participate in euthanasia or assisted suicide in any way.” Appropriate v. inappropriate Letting die v. euthanasia Secondary intent v. direct intent to cause death

24. Burden-benefit ratio • Double effect • Every action has many effects • Only responsible for primary intent • Primary intent has to be good or neutral • Secondary effects can be foreseen and accepted • Hard to know “direct” intent • Opiods contributing to death feels like “direct” intent

25. Problem of starting & stopping • Withholding • Withdrawing

26. Case 2 • Martha 49-yr-old • Hypertension, quit smoking • After stroke living will, but no DNR • 2nd stroke, coma then PVS • NG-tube • Husband asks for stop “quality of life” • Priest –”starving” • Law requires terminal condition • Husband asks to “do something” to hasten death

27. Continuum Simplest   Most complicated Applied to cases • Simplest: 92-year-old with bone CA • Less simple: Fred • Most complicated: Martha & Terri Schiavo

28. Case 2 Analysis • Appropriate v. inappropriate • Following her wishes • Quality of life • Medical indications • Burden benefit

29. Summary • Three separate questions • Who decides? • What basis to discontinue • Can the institution participate? • Simplest case: • Capacitated patients • Patients with clear directives • Patients with little burden/ large benefit/ primary intent is death

30. Summary • Ethics management • Avoid a rush to judgment • People know where to turn • Greatest concerns with PVS & H20 • Communications: “Catholic institutions follow the wishes of patients insofar as they are consistent with tradition” • Very few ask for treatments that cannot be honored

31. Wired for Life