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Project HealthDesign CONNECTING HEALTH IN EVERY-DAY LIVING TO THE CARESTREAM

Project HealthDesign CONNECTING HEALTH IN EVERY-DAY LIVING TO THE CARESTREAM. Patricia Flatley Brennan, RN, PhD, FAAN University of Wisconsin – Madison School of Nursing. Project HealthDesign: Mission. We need to go from this…. Project HealthDesign: Mission. To this!.

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Project HealthDesign CONNECTING HEALTH IN EVERY-DAY LIVING TO THE CARESTREAM

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  1. Project HealthDesign CONNECTING HEALTH IN EVERY-DAY LIVING TO THE CARESTREAM Patricia Flatley Brennan, RN, PhD, FAAN University of Wisconsin – Madison School of Nursing

  2. Project HealthDesign: Mission We need to go from this…

  3. Project HealthDesign: Mission To this!

  4. Project HealthDesign: About the Project Project HealthDesign • $9.5 Million National Program • Created in 2006 • Funded by the Robert Wood Johnson Foundation • Through its Pioneer Portfolio • National Program Office: University of Wisconsin - Madison School of Nursing

  5. Project HealthDesign: What We’ve Learned Collecting ‘observations of daily living’ may be the most important feature of PHRs • Mood, sleep, diet, exercise, and adherence to medications, etc. • Selected and reported by patients • Rarely collected in the clinical setting

  6. Project HealthDesign: What We’ve Learned People don’t live from clinical episode to clinical episode… they manage their health every day

  7. Project HealthDesign: What We’re Doing Now Testing whether and how ODLs can be collected interpreted and acted upon by patients and clinicians

  8. Project HealthDesign: What We’re Doing Now • Five grantee teams • Regulatory & Assurance Core • Policy & Communications Core • Technical Core • Design Consultancy

  9. Project HealthDesign: Current Grantee Teams Working with target populations to: • Identify, capture & store ODLs • Analyze & interpret the ODLs data • Provide feedback to patients • Integrate ODLs into the clinical workflow

  10. Project HealthDesign: Current Grantee Teams Using innovative technology • Mobile devicesLike smartphones & iPods • Wireless sensors & bio-monitors to observe routine tasks • InterfacesInterpret & display data to different audiences – people & professionals

  11. Project HealthDesign: Current Grantee Teams Capitalizing on Data Integrators Project HealthDesign Common Platform, Microsoft HealthVault, GoogleHealth, The Carrot • Accelerates development • Increases interoperability • Improves security • Can support a variety of personal health application tools • Reduces implementation time

  12. Project HealthDesign: Current Grantee Teams • Carnegie Mellon University Seniors with arthritis and at risk of cognitive decline • RTI International & Virginia Commonwealth University Patients with asthma and depression or anxiety • San Francisco State University Low-income teens who are managing obesity and depression • University of California, Berkeley Adults with Crohn’s Disease • University of California, Irvine & Charles Drew University Pre-term, low-birth-weight infants and their caregivers

  13. Project HealthDesign: What We’ve Learned Users’ ethical, legal, and social concerns about sharing PHR information are real, but surmountable Top three concerns: • Control over access to information • Managing privacy rights • Shifting shared decision-making to the patient

  14. Watch Us As We Work www.projecthealthdesign.org On Twitter: @PrjHealthDesign

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