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SPINA BIFIDA ASSOCIATION OF [NAME OF LOCAL SBA]

What is Spina Bifida?. SPINA BIFIDA ASSOCIATION OF [NAME OF LOCAL SBA]. SPINA BIFIDA ASSOCIATION OF [NAME OF LOCAL SBA]. What is Spina Bifida?. The most common, permanent and disabling birth defect in the United States. SPINA BIFIDA ASSOCIATION OF [NAME OF LOCAL SBA]. Who is at risk?.

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SPINA BIFIDA ASSOCIATION OF [NAME OF LOCAL SBA]

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  1. What is Spina Bifida? SPINA BIFIDA ASSOCIATION OF [NAME OF LOCAL SBA]

  2. SPINA BIFIDA ASSOCIATION OF [NAME OF LOCAL SBA] What is Spina Bifida? • The most common, permanent and disabling birth defect in the United States

  3. SPINA BIFIDA ASSOCIATION OF [NAME OF LOCAL SBA] Who is at risk? • Eight babies are born with Spina Bifida every day • 60 million women are at risk of having a baby born with Spina Bifida

  4. SPINA BIFIDA ASSOCIATION OF [NAME OF LOCAL SBA] What are the effects of Spina Bifida? • Ongoing medical challenges • Full or partial paralysis • Nervous system complications • Bladder and bowel control difficulties • Learning disabilities • Depression • Social and sexual issues • Latex allergy

  5. SPINA BIFIDA ASSOCIATION OF [NAME OF LOCAL SBA] What does this mean for [name of the organization]? • Latex allergy • 70% of children and adolescents with Spina Bifida are sensitive to latex • Items made with latex include: • Promotional items like stress balls • Balloons • Rubber bands • Rubber erasers

  6. SPINA BIFIDA ASSOCIATION OF [NAME OF LOCAL SBA] How does Spina Bifida happen? • First month of pregnancy • Before most women know they are pregnant • The spine does not close • Causes an opening or lesion • Damaged nerves may result in varying degrees of paralysis

  7. SPINA BIFIDA ASSOCIATION OF [NAME OF LOCAL SBA] What happens after birth? • Surgery • Reduces risk of infection • Further damage to the spinal cord • Life-long treatment and care

  8. SPINA BIFIDA ASSOCIATION OF [NAME OF LOCAL SBA] Can Spina Bifida be prevented? • Exact cause is not known • Medical research confirms link between folic acid and Spina Bifida* • Women who take 400 mcg of folic acid every day reduce the risk by up to 70%. • BEFORE becoming pregnant • During first three months of pregnancy * (and other birth defects)

  9. SPINA BIFIDA ASSOCIATION OF [NAME OF LOCAL SBA] What is folic acid? • B-vitamin that builds healthy cells • In most multivitamins • Foods • Leafy green vegetables (broccoli and spinach) • Fruits and juices (orange juice) • Folic acid-fortified breakfast cereals and other bread and grain products The surest way to get enough folic acid every day is to take a vitamin with folic acid. 

  10. SPINA BIFIDA ASSOCIATION OF [NAME OF LOCAL SBA] Our Mission • Promote prevention of Spina Bifida • Enhance the lives of all affected

  11. SPINA BIFIDA ASSOCIATION OF [NAME OF LOCAL SBA] What We Do • [Number of individuals and families served] • Serve as a liaison with local or nearby medical experts • Engage in community activities

  12. SPINA BIFIDA ASSOCIATION OF [NAME OF LOCAL SBA] Our Friends in the Community • [List your current community partners]

  13. SPINA BIFIDA ASSOCIATION OF [NAME OF LOCAL SBA] What can [name of local SBA] offer [name of the organization]? • [Provide informational materials about folic acid and Spina Bifida in English and Spanish] • [Family members and staff to volunteer at your events] • [List your organization name and logo in our Web site and newsletter]

  14. SPINA BIFIDA ASSOCIATION OF [NAME OF LOCAL SBA] What can [name of local SBA] offer [name of the organization]? • [Present information about folic acid to your members or staff] • [Present before the organization’s support groups/regular meetings] • [Present a personal story about Spina Bifida and the importance of taking folic acid every day]

  15. SPINA BIFIDA ASSOCIATION OF [NAME OF LOCAL SBA] What can [name of local SBA] offer [name of the organization]? • [Present a personal story about Spina Bifida and talk about the importance of taking folic acid every day]

  16. SPINA BIFIDA ASSOCIATION OF [NAME OF LOCAL SBA] What can [name of the organization] do for [name of local SBA]? • [Volunteer/sponsor/co-sponsor/in-kind] at upcoming [name of event] • [Invite your chapter to present information about folic acid to their members or staff] • [Present information about your organization to our chapter]

  17. SPINA BIFIDA ASSOCIATION OF [NAME OF LOCAL SBA] What can [name of the organization] do for [name of local SBA]? • [Help us distribute materials by sharing them with your members] • [Help local SBA identify reliable translation options]

  18. SPINA BIFIDA ASSOCIATION OF [NAME OF LOCAL SBA] Additional Resources • [Local contact information, including name, address, e-mail address, and phone/fax number] • Spina Bifida Association • National Resource Center: 1-800-621-3141 • www.spinabifidaassociation.org

  19. SPINA BIFIDA ASSOCIATION OF [NAME OF LOCAL SBA] Questions?

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