HL7 Child Health Work Group

1. HL7 Child Health Work Group May 15-17, 2011 HL7 Work Group Meeting Lake Buena Vista, FL

2. Agenda HL7 Child Health Work Group • Who We Are • What We Do and Why • What’s Next

3. Who We Are HL7 Child Health Work Group Founded: 2003 Leadership: David Classen, MD, Gaye Giannone Dolin, RN, Andy Spooner, MD and Feliciano Yu, MD Participation: Primarily CMIOs, physicians, medical informatics experts and vendor representatives Distribution: 100+ previously on email; listserv unknown Operations: One in person meeting and two webcast meetings in conjunction with HL7 work group meetings; Monthly calls and other calls and webcasts as needed

4. What We Do • Functional Data Standards • Standards for EHR systems include critical child health functions • Published EHR system standards for general pediatrics • Work was baseline for CCHIT child health certification criteria, other • Terminology Data Standards • Explored improving terminology systems for pediatrics using AAP policy statements (e.g. SNOMED) • Funding not available to support further work • Messaging Data Standards • Created immunization activity diagrams and story boards – now part of HL7 messaging standards • Provided incubation and leadership in HL7 to develop standard for reporting quality measure data – Quality Reporting Document Architecture using HL7 CDA • Provided support to create standards-based neonatal care report using HL7 CDA

5. Why • Improve data standards for health care • Build pediatric consensus on new data standards • Maintain broad representation and participation in HL7 initiatives on behalf of child health care • Participate in relevant national HIT data standards public comment periods on behalf of child health care • Influence adoption of pediatric requirements • Impact vendor and provider awareness and adoption of adoption of pediatric standards • Earn commitment from pediatric stakeholders • Secure support and leadership for efforts

6. What’s Next • EHR Functional Model Release 2 • Neonatology Functional Profile for EHR Systems • Child Health Functional Profile Release 2

7. Functional Standards: Relationships of Artifacts

8. Example Edits and Additions to EHR FM Criteria requested by Child Health for original model now standard Function: “Manage Immunization Administration” “Capture and maintain discrete data concerning immunizations…” Edits in RED for CH Profile

9. Connect With Us • www.hl7.org for Child Health Listserv • Monthly Conference Calls

10. Contact Information Joy Kuhl Principal Optimal Accords, LLC joy@optimalaccords.com Offiice: (818) 308-7063 Mobile: (818) 817-1050 Administrative Co Chair, HL7 Child Health Work Group On behalf of Alliance for Pediatric Quality AAP, ABP, CHCA & NACHRI

11. Discussion, Next steps

12. Alliance for Pediatric Quality Common goals: HIT works for children

13. AllianceStrategy • Work for consensus and speak with one voice for pediatric quality and health information technology. • Endorse and promote projects that advance our objectives for quality and health information technology in children’s health care. • Convene stakeholders in children’s health care on key quality and health information technology issues. • Advocate for policy, standards, systems, and products that will improve the quality of children’s health care.

14. Why is this important? Numerous Initiatives Underway to Support National Goals for Adoption and Interoperability of EHR technology Problem: Children are nearly one third of the population. They receive care through HIT in a variety of settings. National efforts are largely adult-focused; Pediatric efforts for influence are sometimes isolated and duplicative. Opportunity: Work together as pediatric HIT community with one strong voice to influence national initiatives and ensure needs of child healthcare are addressed.

15. Strategy for Influence Alliance for Pediatric Quality Support work, convene, build consensus, endorse and advocate Identify Requirements Identify and Respond to Opportunities Set National Agenda Adopt Standards and other Requirements for Meaningful Use Desired Outcomes Health Level Seven (HL7) Child Health Work Group HHS: Coordinator IFR Support safe care for children Participants in Pediatric Healthcare Information Technology Community Develop and Pilot Standards AAP Child Health Informatics Center and COCIT Enable pediatric performance measurement by improving interchange of standardized information HL7, SNOMED… Health InformationTechnologyvendors Integrating the Healthcare Enterprise HIMSS Pediatric Group NHINS, Projects, Collaboratives NACHRI Pediatric Advisory Council Reduce system implementation costs due to duplication and customization NQF, CMS Vendor Consortia CHCA CIO and CMIO Forums and Special Projects Child health practitioners, clinicians and hospitals Harmonize Support achievement of meaningful use of EHR technology in pediatrics ONC, other tbd Certify Products ATCB

16. HL7 Child Health AAP HL7 CCHIT Published EMR Position Papers Developed Pediatric EMR Functions Published Pediatric EMR Functional Model Standard Influenced EMR Vendor Certification Criteria Vendor Compliance & Certification; Provider Adoption Alliance Coordination, Support and Endorsement An Example