The Arc of California August 2012

1. The Arc of California August 2012 “The Arc is the nations oldest and largest association for people with intellectual and all other developmental disabilities and their families since 1953”

2. Overview… • Core Values • Chapters • Systems Reform Projects • Advocacy Publications • Public Policy: State Lobby • Sponsored Legislation • Public Policy: National Lobby • State Stakeholder Role • Conferences and Professional Development

3. The Core Values of The Arc • People First • Democracy • Visionary Leadership • Community Participation • Diversity • Integrity and Excellence

4. Chapters of The Arc of CA • The Arc of Alameda County • The Arc of Amador & Calaveras Counties • Bakersfield Arc • The Arc of Butte County • Contra Costa Arc • The Arc of Fresno • The Arc of Imperial Valley • People First of California • The Arc of San Diego • The Arc of Riverside • The Arc of San Francisco • Alpha Resource Center of Santa Barbara • The Arc of Solano • The Arc of South Bay • The Arc of Southeast Los Angeles • The Arc of Taft • The Arc of Ventura County • The Arc of San Bernardino • The Arc of San Joaquin • Placer Arc • DesertArc • Desert Area Resource Center Supporters… Orange County ARC Over 10,000 members in California and 250,000 members nationwide making The Arc the largest membership association for parents, families, self-advocates and supporters in the country. Also the latest Forbes poll indicates The Arc is the eighth largest non-profit organization in the nation.

5. Projects of The Arc of California • Community Organizing. • The California Alliance for Direct Support Professional – a state association for direct service workers who support people with disabilities and seniors. • Advocacy Training • Fetal Alcohol Spectrum Disorder Advocacy • Coalition Building: Lanterman Coalition, Alliance for Full Participation, Vendor Advisory Chairs, etc.

6. Publications • Monday Morning Memo • Fusion • Annual State Budget Report • Capitol Insider • National Legislative Agenda • 5000 Facebook Friends • 250 Twitter Followers • 4500 Constant Contact • 4200 CapWiz Political Action Alerts

7. Public Policy: State Lobby • Registered Lobbyist in Sacramento, California • 2 Non-registered advocates • Conduct Grassroots Advocacy Campaigns • Track 100 bills a year • Monitor floor sessions and committees addressing issues impacting people with developmental disabilities and their families in the following categories: Children & Families, Criminal Justice, General Systemic , Health & Medical , Housing, In Home Support Services, Mental Health, Olmstead Related, Special Education, Work, Prevention & FASD

8. Sponsored Legislation • SB 1381 Fran Pavley (2012) – The R-Word – Signed by Gov Brown • AB 540 Jim Beall (2011 -2012) – Prevention Bill – Vetoed but may be considered in special session. • SB 110 Carol Lui (2010) – Criminal Justice Bill – Signed by Gov Schwarzenegger. • AB 2702 Wesley Chesbro (2010) – The IPP Bill – Implemented by DDS (bill withdrawn)

9. Public Policy: State Budget Ongoing Budget Related Positions • Protection of the California Lanterman Act • Protect an individual’s right in their IPP to determine the supports and services they need. • Invest in Direct Support Professionals • A comprehensive State Commitment to Prevention

10. Public Policy: National Lobby • Full office of registered professional lobbyists in Washington, DC. • Disability Policy Seminar • Monthly Conference Call Updates on Congress and the Administration. • Weekly and Monthly publication updates on national policy.

11. National Advocacy • Medicaid, Medicare, & SCHIP • Home and Community-Based Services Option • Community Choice Act • Other Long Term Services and Supports • ADA Restoration • Employment • Direct Support Workforce • Education • TANF • Social Security • Housing • Title XX Social Services Block Grant • Transportation • Disability Savings Accounts

12. State Stakeholder Role • Represents our constituents at all ad hoc DDS stakeholder meetings • President appointed by Gov Schwarzenegger to serve on the State Council on Developmental Disabilities • Three representatives from The Arc of CA serve on the national board of The Arc. • The Olmstead Advisory Committee to the Secretary of Health and Human Services – Appointed by Kim Belshe, Secretary of CA Health and Human Services Agency. • The California Early Start Interagency Coordinating Council – Appointed by Dr. Raymond Peterson, Chair. • Governors Committee on Employment of People with Disabilities, Education & Employment Subcommittee – Appointed by Janice Emerzian, Ed.D. Chair. • Chairs the Lanterman Coalition, a coalition of ten of the states largest and most influential statewide stakeholder groups. • Think Tank on Abuse of People with Developmental Disabilities. • The California Fetal Alcohol Spectrum Disorders Task Force. • Member of the California Compassionate Care Coalition, Developmental Disabilities Workgroup. • Community Advisory Committee to the Tarjan Center, the University Center for Excellence on Developmental Disabilities at UCLA. • Planning Committee for the Supported Life Institute Conference, the largest California conference supporting community inclusion. • The California Task Force on Mental Health Services for People with Developmental Disabilities. • Member of the California Association of Voting Advocates – a statewide voting rights and access and participation. • Member of the California Affordable Housing Coalition • Member of the statewide workgroup on Disaster Planning and response headed by the Dept of Developmental Services. •  Elected to the Board of Directors (Vice President) of the National Conference of Executives of The Arc. • Appointed to The Arc of the United States strategic planning committee and later to the committee on affiliation and the future of The Arc. • Organizer for the CA Alliance for Full Participation • Planning Committee for the NCE Summer Training and Education Committee for NCE • Etc., etc., etc.

13. Conferences • National • Convention • Public Policy • NCE – Executive Directors Summer Training • State • Convention • Strategic Planning • Public Policy • Annual Planning for the Supported Life Conference • And more…(Capitol Action, Quality Conference, ANCOR conference, Wellness, etc)

14. Executive Staff:Professional Development • CCE: Support from colleagues in the California Conference of Executives of The Arc – plus quarterly meetings. • NCE: Support from colleagues in the National Conference of Executives of The Arc – annual meeting and topical conference prior to the national convention. • Training: • Annual Summer Training for Executives of The Arc. • A National Network and List Serv for Executives of The Arc to help focus on the unique expectations of an advocacy oriented executive director.

15. Association and Member Benefits National Benefits • Met Desk – Special Needs Trust • Mutual of America - Retirement • Qquest – time sheet data tracking systems • The Conference Depot – Teleconference Services • Jefferson Leasing – Vehicle Leasing • Masune – Discounted First Aid and Safety Supplies • Furniture Concepts – Residential Care furniture supplier • Therap – Web-based Case Management Tools • College of Direct Support, Colonial Insurance, and Philadelphia Insurance (reduced insurance rate) Workforce Development Offer. State Only • Therap – Free for two years only for The Arc of CA chapters • College of Direct Support (reduced rate state only), Colonial Insurance, and Philadelphia Insurance (reduced rate national offer) Workforce Development Offer. • Aflac Special Association Benefit (State Only)

16. What We Did in 2012 • Filed Lawsuit in September 2011 that influenced the 2012-2013 budget proposals • Facilitated a coalition of supporters for the lawsuit that helped with a major communications plan plus raised about $250,000 to fund the lawsuit. • Consistent advocacy with the Los Angeles Special Victims Unit yields results.

17. What We Did in 2012 • Organized the statewide vendor advisory committee chairs. • White house briefing regarding Medicaid and all disability programs. • Hosted the 5th Annual Public Policy Conference in Sacramento.

18. What We Did in 2012 • Joined the California Coalition for Long Term Supports and Services. • Organized 15 advocates from The Arc and UCP for Stakeholder budget meetings • Lobbied the state legislature and Brown Administration officials.

19. What We Did in 2012 • R-Word Bill, Senator Fran Pavley. – The governor signed the bill. • Organized meeting events with Senator Barbara Boxer and Diane Feinstein in Washington DC. • Met with high-level CMS officials.

20. What We Did in 2012 • 120 bills tracked, all opposed bills died in legislature, governor signed 21 of our remaining 25 bills. • Increased outreach to the National Association of Elder law Attorney’s. • Continued community organizing and power building, took board role on the board of directors of Gamaliel of California.

21. What We Did in 2012 • Fought for successful outcome on issue of the crime against people with I/DD DC • Led in opening professional develop opportunities to all executive level staff in The Arc. • Created the California Alliance for Direct Support Professionals (CADSP).

22. What We Did in 2012 • Outreach for action alerts grew by 40%, doubled our Facebook to 5000, and doubled our general email marketing to over 4600 readers and related advocacy groups. • Led in our endorsement of Proposition 30 - Prop 30 passed and millions of dollars in cuts were avoided.

23. Questions? Tony Anderson Executive Director The Arc of California 1225 8th Street, Suite 350 Sacramento, California 95814 (916) 552-6619 tony@thearcca.org