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Update on the UK Renal Data Collaboration (UKRDC)

Update on the UK Renal Data Collaboration (UKRDC). UK Renal Registry 2015 Annual Audit Meeting. Dr Keith Simpson Medical Adviser, UK Renal Registry. UK Renal Data Collaboration (UKRDC) Update on the UK Renal Data collaboration Bristol 05 March 2015

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Update on the UK Renal Data Collaboration (UKRDC)

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  1. Update on the UK Renal Data Collaboration (UKRDC) UK Renal Registry2015 Annual Audit Meeting Dr Keith SimpsonMedical Adviser, UK Renal Registry

  2. UK Renal Data Collaboration(UKRDC) Update on the UK Renal Data collaboration Bristol05 March 2015 Keith SimpsonMedical advisor to the UK Renal Registry keith.simpson@nhs.net

  3. UK Renal Data RenalUnits RPV Labs UKRR SRR RaDaR NHSBT BAPN OtherNational data .

  4. UK Renal Data Collaboration RenalUnits RPV Labs UKRR Warehouse SRR RaDaR10-20 gps NHSBT BAPN OtherNational data .

  5. Demographic Data Clinical Contacts Results Biometric Data Transplantation Haemodialysis Peritoneal dialysis Quality Improvement & Audit Care Plan Clinical notes and correspondence Medication Summaries Decision support Links to Registries, RPV, Labs, Patient Admin. Commissioning

  6. Who Everybody who legitimately handles data:PatientsUnit AdministratorsSecretariesClerkessNursesDoctorsDieticiansOccupational TherapistsPhysiotherapy …

  7. Real time comprehensive links with 1y care, other units, UKT, Labs, PAS Standardised comms xml, HL7, agreed coding (SNOMED-CT) Link clinical problems, to do list, decision support, care planBuilt in safety systems – defaults, prompts, warnings Images, statistical analyses, process controlIncorporate email Cost trackingEquipment monitoring and serviceVoice recognitionSupport for research and teaching

  8. Rules of engagement

  9. Rules of engagement FlexibleFastFunctionalFinanced

  10. Rules of engagement FlexibleFastFunctionalFinanced(Fun)

  11. UK Renal Data Collaboration (UKRDC) Board UK Renal Registry UKRR Scottish Renal Registry SRR Patient View PV UK Registry for Rare Kidney Diseases RaDaR British Association for Paediatric Nephrology BAPN NHS Blood & Transplant Northern Ireland Nephrology Forum Welsh Renal Clinical Network

  12. Lots of help & Support

  13. UK Renal Data Collaboration

  14. UKRenal Data Collaboration Diagnosis SNOMED CTProceduresLab data National Lab Med Catalogue NLMC Terminology Committee Dr Afzal Chaudhry Data set group Drs James Medcalf and Jamie TraynorData set will be published on web Any data

  15. UKRenal Data Collaboration Diagnosis SNOMED CTProceduresLab data National Lab Med Catalogue NLMC

  16. UKRenal Data Collaboration Diagnosis SNOMED CTProceduresLab data National Lab Med Catalogue NLMC Board Thurs 26 Feb 2015Agreed all main relationships, roles, purpose

  17. UKRenal Data Collaboration Diagnosis SNOMED CTProceduresLab data National Lab Med Catalogue NLMC Board Thurs 26 Feb 2015Agreed all main relationships, roles, purpose UKRDC will enable but not force

  18. UKRenal Data Collaboration Diagnosis SNOMED CTProceduresLab data National Lab Med Catalogue NLMC Board Thurs 26 Feb 2015Agreed all main relationships, roles, purpose UKRDC will enable but not force Capitalise on what we have in common

  19. UKRenal Data Collaboration Diagnosis SNOMED CTProceduresLab data National Lab Med Catalogue NLMC Board Thurs 26 Feb 2015Agreed all main relationships, roles, purpose UKRDC will enable but not force Capitalise on what we have in commonDevelop systems that meet the most exacting requirement of any member

  20. UKRenal Data Collaboration Diagnosis SNOMED CTProceduresLab data National Lab Med Catalogue NLMC Board Thurs 26 Feb 2015Agreed all main relationships, roles, purpose UKRDC will enable but not force Capitalise on what we have in commonDevelop systems that meet the most exacting requirement of any memberUse national and international standards if possible

  21. UKRenal Data Collaboration Diagnosis SNOMED CTProceduresLab data National Lab Med Catalogue NLMC Board Thurs 26 Feb 2015Agreed all main relationships, roles, purpose UKRDC will enable but not force Capitalise on what we have in commonDevelop systems that meet the most exacting requirement of any memberUse national and international standards if possibleRetain flexibility

  22. UKRenal Data Collaboration Diagnosis SNOMED CTProceduresLab data National Lab Med Catalogue NLMC Board Thurs 26 Feb 2015Agreed all main relationships, roles, purpose UKRDC will enable but not force Capitalise on what we have in commonDevelop systems that meet the most exacting requirement of any memberUse national and international standards if possibleRetain flexibilityRespond quickly to new requirements

  23. UKRenal Data Collaboration Diagnosis SNOMED CTProceduresLab data National Lab Med Catalogue NLMC Board Thurs 26 Feb 2015Agreed all main relationships, roles, purpose UKRDC will enable but not force Capitalise on what we have in commonDevelop systems that meet the most exacting requirement of any memberUse national and international standards if possibleRetain flexibilityRespond quickly to new requirementsEnable Innovative medical practice (not data comms)

  24. UKRenal Data Collaboration Diagnosis SNOMED CTProceduresLab data National Lab Med Catalogue NLMC Board Thurs 26 Feb 2015Agreed all main relationships, roles, purpose UKRDC will enable but not force Capitalise on what we have in commonDevelop systems that meet the most exacting requirement of any memberUse national and international standards if possibleRetain flexibilityRespond quickly to new requirementsEnable Innovative medical practice (not data comms)Manage the data not the projects

  25. UKRenal Data Collaboration Why is it so hard?What could go wrong?

  26. Interoperability

  27. UK Renal Data Collaboration

  28. http://www.theguardian.com/world/2013/sep/05/nsa-gchq-encryption-codes-securityhttp://www.theguardian.com/world/2013/sep/05/nsa-gchq-encryption-codes-security

  29. UK Renal Data Collaboration (UKRDC) A wee success story

  30. UK Renal Data Collaboration (UKRDC) A wee success storyD4D GrantEnable patients to lead in medicines reconciliation

  31. UK Renal Data Collaboration RenalUnits RPV Labs UKRR Warehouse SRR RaDaR10-20 gps NHSBT BAPN OtherNational data .

  32. Group discussions:What will the UKRDC mean for my renal unit? UK Renal Registry2015 Annual Audit Meeting Chair:Ron Cullen Director, UK Renal Registry

  33. To think about / discuss 1. What will the UKRDC mean for my renal unit? What do we do about OR how to prevent: 2. Change in political climate 3. Standards change 4. Doctor No 5. Manager’s who don’t get it 6. IT who don’t get it 7. We can’t afford it 8. Patients lose faith

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