Organ Donation and Transplantation Strategic Performance Update

1. Organ Donation and Transplantation Strategic Performance Update 27 March 2014

2. Overview • Overview of planned initiatives and timescales • 2013/14 Performance against ODT strategic targets • Updates on actions and progress against each outcome

3. Taking Organ Transplantation to 2020: Outcomes • Action by society and individuals will mean that the UK’s organ donation record is amongst the best in the world and people donate when and if they can. • Action by NHS hospitals and staff will mean that the NHS routinely provides excellent care in support of organ donation and every effort is made to ensure that each donor can give as many organs as possible • Action by NHS hospitals and staff will mean that more organs are usable and surgeons are better supported to transplant organs safely into the most appropriate recipient • Action by NHSBT and Commissioners means that better support systems and processes will be in place to enable more donations and transplant operations to happen.

4. Outcome 1: Action by society and individuals will mean that the UK’s organ donation record is amongst the best in the world and people donate when and if they can.

5. Outcome 1 – Performance against target 2013/14

6. Outcome 1 – Regional variations in performance

7. Outcome 1 - Progress • Public Behaviour strategy presented to earlier describes evidence based approach to changing public behaviour. • Human Transplantation (Wales) Bill proceeding with £2m to be spent on communication strategy. • New advanced consent training programme for SNs underway. • Utilising national forums such as British Transplantation Society Congress to open a national debate

8. Outcome 2: Action by NHS hospitals and staff will mean that the NHS routinely provides excellent care in support of organ donation and every effort is made to ensure that each donor can give as many organs as possible.

9. Outcome 2 – Performance against target 2013/14

10. Outcome 2 – Progress • National Referral Service vision agreed • Project to work with Coroners and Police underway: gathering data on impact of coronial refusals and building relationships with Coroners & their teams • Hospital specific data routinely published on NHSBT clinical website

11. Outcome 3: Action by NHS hospitals and staff will mean that more organs are usable and surgeons are better supported to transplant organs safely into the most appropriate recipient.

12. Outcome 3 – Performance against target 2013/14

13. Outcome 3 - Progress • Data from ‘Scout’ project to improve cardiothoracic donor management indicates an increase in cardiac donation. • Peer Review system (with NHS England and other commissioners): aims & objectives being agreed with stakeholders. Proposals due in autumn. • UK DEC consulting on an ethical framework for DBD donation. • New perfusion technologies: Horizon Scanning event held for clinical community & working group established.

14. Outcome 4: Action by NHSBT and Commissioners means that better support systems and processes will be in place to enable more donations and transplant operations to happen.

15. Outcome 4 – Progress (1) • NORS Review: independent chair appointed & plans in development. • New objectives for Regional Collaboratives & CLODs developed. CLODs & Donation Committees Chairs surveyed. • Workforce Strategy and SNOD role review in progress: meetings for staff, literature review, benchmarking in progress ahead of discussion with external stakeholders. • Organ donation training proposal for ICU trainees agreed – needs funding.

16. Outcome 4 – Progress (2) • Training and accreditation programme for retrieval surgeons in development: engaged with Royal College of Surgeons. • Operational Improvement Process Workshops for Duty Office held and initial process improvements underway. • Review of IT systems and applications undertaken: initial stakeholder discussions being held to build understanding of the need for a programme of improvement.

17. Outcome 4 – Performance against target 2013/14

18. Performance against Strategic Targets 1 Consent/authorisation for organ donation – aim for consent/authorisation rate above 80%. 2 Deceased organ donation – aim for 26 deceased donors per million population. 3 Organ utilisation – aim to transplant 5% more of the organs offered from consented, actual donors. 4 Patients transplanted – aim for a deceased donor transplant rate of 74 pmp. # based on rolling 12 month period.

19. Strategy Governance Groups 2020 Oversight Group Chaired by Elisabeth Buggins Initial meeting held: organisation specific plans due for discussion in May (4 HDs, Professional Bodies etc). 2020 Strategy Stakeholder Group Chaired by Prof Gurch Randhawa First meeting held in January, group have agreed to share examples of good practice and initiatives prior to next meeting in May at which Public Behaviour Strategy will be discussed.

20. Future challenges • Operational Funding – secured for 2014/15 but urgently need longer term agreements. • Delivering cost improvements quickly – especially where politically sensitive or IT dependent. • Funding for major developments: • Public Behaviour Strategy • Workforce & Role Redesign Strategy • New Perfusion Technologies • Replacing creaking IT systems and applications