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TUMOR REGISTRIES

TUMOR REGISTRIES. THE SEER PROGRAM. The SEER program. The S urveillance, E pidemiology, and E nd R esults is a program of the National Cancer Institute seer.cancer.gov

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TUMOR REGISTRIES

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  1. TUMOR REGISTRIES THE SEER PROGRAM

  2. The SEER program • The Surveillance, Epidemiology, and End Results is a program of the National Cancer Institute • seer.cancer.gov • The SEER collects and publishes cancer incidence and survival data from population-based cancer registries covering ~26% of the population in the U.S.

  3. Background • SEER began collecting data in1973 in the states of Connecticut, Iowa, New Mexico, Utah, and Hawaii, as well as metro areas of Detroit and San Francisco-Oakland • 1974-75  metro Atlanta and Seattle Puget Sound • 1978  10 predominantly black rural counties of Georgia • 1980  American Indians in Arizona • Prior to 1990  New Orleans (rejoined in 2001), LA; New Jersey (rejoined in 2001); Puerto Rico (1973-1989); Alaska • 1992  Los Angeles county and 4 counties in the San Jose-Monterey area • 2001 Kentucky, remaining counties of California

  4. SEER areas

  5. Background, cont’d • Joint effort by the NCI, the CDC, and the North American Association of Central Cancer Registries (NAACCR) • To guide state registries to achieve data content and compatibility for pooling and improving national estimates

  6. Goals of the SEER • Collect complete and accurate data on all cancer diagnosed among residents of the geographic areas covered by SEER cancer registries • Quality control / quality improvement • Report on cancer burden (incidence, mortality, survival) overall, and in subgroups of the population • Variations / changes in patterns and trends over time

  7. Goals of the SEER, cont’d • Provide research resources to the general research community including a public use file each year, and software to facilitate the analysis of the database • Provide training materials and web-based training resources to the cancer registry community.

  8. Source: NIH publication No. 05-4772; September 2005

  9. Source: NIH publication No. 05-4772; September 2005

  10. The SEER database • The SEER program collects and publishes cancer incidence and survival data from 15 population-based registries that cover ¼ of the U.S. population. • Data on more than 6 million in situ and invasive cases are included in the database • 350,000+ cases being added each year from the SEER coverage areas.

  11. Contents of the SEER database • Demographics • Detailed tumor characteristics •  cancer stage (among many other measures) • Vital status and cause of death •  mortality, survival • SEER data linked with Medicare • Enhances the richness of each of the databases

  12. Interactive features http://seer.cancer.gov/statfacts/index.html • Great to obtain quick stats as you’re writing a grant application or a manuscript.

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