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Health Statistics Users Group

Health Statistics Users Group. Developments in data linkage May 17 2011, Wellcome Trust. Maternity data linkage in England and Wales. 1949-50 Linkage of infant deaths to birth records 1964 Linkage of infant deaths to birth records 1971 OPCS/ONS Longitudinal Study began

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Health Statistics Users Group

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  1. Health Statistics Users Group Developments in data linkage May 17 2011, Wellcome Trust

  2. Maternity data linkage in England and Wales • 1949-50 Linkage of infant deaths to birth records • 1964 Linkage of infant deaths to birth records • 1971 OPCS/ONS Longitudinal Study began • 1975 on Routine linkage of infant deaths to birth records • 1993 on Routine linkage of death records of people born from 1993 onwards to their birth records • Linkage of NHS Numbers for Babies records to birth registration record. Routine from 2006. Project to link in Maternity HES / PEDW and Wales Child Health records. 2005-2007. • Further linkages?

  3. Oxford Record Linkage Study 1962 • Birth notification • Birth registration • Midwives’ records of home births • Records of hospital births • Stillbirth notification • Hospital in-patient summary sheet • Death registation • Death notification

  4. Recent national developments • Longitudinal studies in Scotland and Northern Ireland • National programmes • Scottish Health Informatics Programme • Secure Anonymised Information Linkage (SAIL) Databank – Wales • Research Capability Programme - England

  5. Linkage of routine data to cohort studies • Linkage of ALSPAC to primary care databases • Linkage of health records to Millennium Cohort study • childhood obesity, asthma, infections, immunisations

  6. Linkage with primary care databases • Linkage of HES data to General Practice Research database • Linkage cardiac event register to primary care records • Randomisation within primary care databases and use in trials

  7. Public Understanding • Theatre of Debate – Y Touring • ‘It’s good to talk’ – New Economics Foundation • Active engagement and production of lay orientated information material

  8. Programme • 1.15 Welcome, background and introduction • 1.30 Tjeerd van Staa, Linkage with the General Practice Research Database - brief overview • 1.45 Frank Sullivan, Scottish Health Informatics Programme • 2.15 Chris Dibben, Scottish Longitudinal Study, use of administrative data and Administrative Data Liaison Service • 2.45 Nigel Townsend, Y Touring, Theatre of Debate • 3.15 Break • 3.30 Discussion - Participants' experience of linkage and ethics / research governance issues • 4.00 End

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