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So far this year...

Patient awareness campaigns 2013-14 What’s happened, what’s coming up and how you can get involved Daniel Spiers – NIHR Clinical Research Network Communications Manager. So far this year. Mystery shopper. Campaign I Mystery shopper. Background Clinician-based approach Hugely successful

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So far this year...

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  1. Patient awareness campaigns 2013-14What’s happened, what’s coming up and how you can get involvedDaniel Spiers – NIHR Clinical Research Network Communications Manager

  2. So far this year... Mystery shopper

  3. Campaign IMystery shopper Background • Clinician-based approach • Hugely successful • Over 630,000 patients participated during 2012-13 • 99% per cent of Trusts now support clinical research • BUT patients often unaware of research unless they are approached (Source: CRN OnePoll consumer survey 2012) • We decided to explore how research was being promoted locally, within Trusts

  4. The mystery shopper initiative • 40 Trusts, 82 sites • November/December 2012, results published January 2013 • Can patients find information about clinical research in the places they would expect to look? (according to consumer survey) • Are patients signposted appropriately when they do ask?

  5. What we found • 91% of sites did not have any information on clinical research activity in the places patients are most inclined to look (eg reception, notice-boards, electronic screens, leaflet displays)

  6. What we found • Nearly half of all receptionists told the mystery shopper that research was “not something we do” and directed the shopper to another organisation, or had no suggestion

  7. Support for Trusts post-shopper • “We do clinical research” brochure: outlines existing and new materials to help Trusts to raise patient awareness about research • Resources can be branded with Trust logo • Some things paid-for, some free • Can be ordered online • Examples of good practice and a check-list

  8. Impact (short-term) • 20 Trusts looking to do their own investigation: survey available to replicate if wanted • Trusts are making use of online ordering – 1600 items ordered and growing • Many supportive calls and comments from research nurses and clinicians across the country; including social media comments/group activity • Clinical Research Network equivalent in Wales looking to replicate our survey in all their research-active sites

  9. Links to resources • Mystery shopper results. Report available at: • www.crncc.nihr.ac.uk/mysteryshopperreport • Mystery shopper questionnaire available at: • www.crncc.nihr.ac.uk/Resources/NIHR%20CRN%20CC/Documents/Mystery%20Shopper%20Questionnaire.pdf • “We do research” brochure of support materials • www.crncc.nihr.ac.uk/profilepack • Online ordering facility for research awareness materials • www.resourceorders.nihrcrn.org.uk

  10. Background Campaign II Only 21% of patients feel very confident of asking clinician about research (NIHR CRN OnePoll consumer survey 2013). International Clinical Trials day 2013 campaign, the NIHR decided to address this through “OK to ask”. This campaign is aimed at patients, medical professionals and the public. Everyone can get involved and help spread the word that it's OK to ask about clinical research.

  11. What happened

  12. What happened:Social media

  13. A bit more detail Twitter • Teasers/announcements • Created a specific hashtag to measure and track activity • Encouraged retweets to raise awareness and demonstrate support

  14. facebook • Pointed patients to the facebook page to share their questions and experiences • Shared videos and photographs with a patient audience • Encouraged support through likes, comments and shares

  15. Press Impact

  16. Feedback

  17. Campaign III • Research changed my life • Research profile is often science based • But human aspect is key • Research changes lives – human stories • 20 case studies • Campaign will champion the significance of research to ….individuals and its impact on health of the nation

  18. Things you can do right now • “Like” the CRN page on facebook www.facebook.com/nihrcrn

  19. Things you can do right now • “Like” the CRN page on facebook www.facebook.com/nihrcrn • “Like” the NIHR OK to ask page on facebook www.facebook.com/nihroktoask • Follow @NIHRCRN on twitter www.twitter.com/NIHRCRN • Follow @OfficialNIHR on twitter www.twitter.com/officialNIHR • Sign up for the CRN patient awareness e: newsletter and help us take “OK to ask” forward daniel.spiers@nihr.ac.uk

  20. Thank you Email: daniel.spiers@nihr.ac.uk

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