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Josephine P. Wong, RN, PhD Daphne Cockwell School of Nursing

Improving HIV prevention, treatment and care through community-based action research in racial minority and newcomer communities. Josephine P. Wong, RN, PhD Daphne Cockwell School of Nursing Faculty of Community Services, Ryerson University OMHARN Knowledge Translation Forum

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Josephine P. Wong, RN, PhD Daphne Cockwell School of Nursing

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  1. Improving HIV prevention, treatment and care through community-based action research in racial minority and newcomer communities Josephine P. Wong, RN, PhD Daphne Cockwell School of Nursing Faculty of Community Services, Ryerson University OMHARN Knowledge Translation Forum November 18, 2011

  2. A coalition formed in 1999 to reduce barriers faced by people living with HIV/AIDS (PHAs) who are immigrants, refugees or with precarious status in Canada Coalition of over 40 health, legal and social service organizations plus individual immigrant/refugee PHAs Focuses on Empowerment Education, Research, Service Coordination and Advocacy on issues related to HIV, Immigration and Access Committee For Accessible AIDS Treatment (CAAT)

  3. Changing Demographics of HIV • In the 1980s, over 80% of persons living with HIV/AIDS were men who had sex with men (MSM) • In 2009 – MSM (42%), heterosexual (31%), intravenous drug user (22%) • In 2009, over 67% of all reported HIV cases still did not have information on race or ethnicity • Among HIV case reports with ethnic or race information in 2009, racialized new immigrants and refugees comprised 22.5% of new HIV cases (PHAC, 2009) • Over 40% of the people living with HIV/AIDS (PHAs) from endemic countries contracted HIV after their arrival in Canada (Remis et al., 2006)

  4. Promoting the health of racial minority and newcomer people living with HIV/AIDS (PHAs) Critical social perspective MEIPA: Meaningful & Equitable Involvement of PHAs Health & QoL of PHAs Community Capacity Building

  5. 2006-8 Improving mental health service access for immigrant, refugee & non-status PHAs (IRN-PHAs) • Component 2: Experiences of service providers • 103 Service Providers • FGs & interviews (37) • surveys (66) • Component 1: Explore experiences of IRN-PHAs • 47 participants • FG & Interviews + • Component 3: Collective development of Best Practices Framework • 21 IRN-PHAs • 6 research team members • co-analysis  recommendations

  6. Best Practice Recommendations:

  7. Legacy Project: A structured mentorship initiative

  8. CAAT Follow-up : Research-Policy-Action

  9. The MEL Study: Mobilizing ethno-racial leaders against HIV stigma and Discrimination (2009/2010) • BACKGROUND • Followed-up study from recommendations of MH Access Study to explore the challenges and opportunities in engaging leaders from ethnoracial minority communities to address HIV stigma and discrimination. • seven focus groups – Recruited 22 faith, media & social justice leaders and 23 PHAs from five ethnoraical communities • 3 community forums – engaged over 60 stakeholders Transformation through Collective Empowerment

  10. Cycle of Social & Internalized HIV Stigma/Discrimination Stigma

  11. Key Follow-Up Action Strategies & Study Recommendations • Reclaiming HIV as an important health and fundamental human rights issue concerning everyone • Facilitating critical dialogues within and across the target sectors to address the cognitive and affective knowledge gaps related to HIV/AIDS • Developing strategies to reduce internalized stigma and external stigma / discrimination

  12. Follow-up Research: CHAMP STUDY Community Champions HIV/AIDS Advocates Mobilization Project – An intervention study to: • Engage ethnoracial and newcomer PHA and Non-PHA leaders • Pilot and evaluate 2 interventions: • Acceptance Commitment Training, and • Social Justice Capacity Building Training • Evaluate effectiveness of these 2 intervention in • addressing social and internalize HIV stigma • Mobilizing PHAs and non-PHAs to become HIV champions

  13. Promoting the health of racial minority and newcomer people living with HIV/AIDS (PHAs) Critical social perspective MEIPA: Meaningful & Equitable Involvement of PHAs Health & QoL of PHAs Community Capacity Building

  14. THANK YOU CAAT Coordinator: Maureen Owino<MaureenO@regentparkchc.org> Legacy Project Coordinator: Derek Yee <DerekY@regentparkchc.org> Newcomer SH Promotion Project: GodeliveNdayikengurukiye<GodeliveN@regentparkchc.org> CAAT Co-Founder & OHTN CBR Research Scientist: Dr. Alan Li <AlanL@regentparkchc.org> CAAT Researcher & Associate Professor, Ryerson University: Dr. Josephine P. Wong <jph.wong@ryerson.ca

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