Query Health Distributed Population Queries Implementation Group Meeting

1. Query Health Distributed Population QueriesImplementation Group Meeting October 11, 2011

2. Participation Instructions for WebEx Select the “Q&A” button in the WebEx toolbar. Select “All Panelists” in the Q&A box. Type your question and hit send. We’ll call on you to state your comment / question . • Please Note: • This session will be recorded • Lines are open so please mute your line to avoid “Music on Hold”

3. Agenda • Community-Driven Timeline Review • Summary of Last Meeting & Reminders • Workgroup Updates • Clinical • Operations • Technical • Charter – Community Consensus • Face to Face Announcements • Open Discussion / Next Steps

4. Query HealthScope and Approach HIT Policy Committee: Policy Guideposts Practice drives standards Rough consensus Running code (open source) Pilot Specifications Standards

5. Query HealthWhere We are Focus on community driven activities and milestones

6. Query Health Meeting Time Reminders Implementation Group Tuesdays 1:30pm-3:00pm EDT Clinical Work Group Wednesdays 12pm-1pm EDT Operations Work Group Thursdays 11am-12pm EDT Technical Work Group Thursday 2:00 pm-3:00 pm EDT First Face to Face Meeting October 18-19 Sign Up at QueryHealth.org Download to your calendar at QueryHealth.org

7. Recap of Last Meeting • Check in on Query Health Scope and Timeline • Reminder – Timeline will become community-driven as the initiative progresses • Reviewed activities of each working group • Clinical – Continued prioritization and refinement of User Stories • Technical – Abstract Model and Technical Requirements • Operations – Operational Requirements • Discussion on Implementation Workgroup activities

8. Action Items

9. Clinical Working Group Update from 10/5 Meeting

10. Key Topics Covered/Discussed • Reviewed Use Case Outline • Presented & Discussed Working Group Timeline • Reviewed User Story Rankings • Discussed Revising User Story Ranking Approach

11. Key Decisions & Next Steps Decisions • Michael Buck, Rich Elmore and Merideth Vida are working to revise the approach for ranking the User Stories Work Assignments/Next Steps • Each User Story author was asked a series of questions to help with defining the new User Story ranking approach • Is there a community or organization that has an existing infrastructure of people and systems that supports this type of query today? Please describe. • If this user story was selected, would that community be motivated to participate in a Query Health pilot in the first/second quarter of 2012? • Does the data we would query exist within the clinical records today? • Assuming the availability of a reference implementation, would you consider this User Story an easy implementation(i.e., something that could be implemented in a 1-2 month period)? • Working Group members will be asked to recast their rankings based on new framework presented later this week.

12. Operations Working Group Update from 10/6 Meeting

13. Key Topics Covered/Discussed • Reviewed the ‘Operational Requirements for Query Health’ - a narrative description of the operational requirements that will govern the Generic User Story – which was drafted by the Clinical Workgroup • 10/6 meeting focused on Best Practices for organization, management, and coordination that need to be considered when developing a distributed query network • Community members added a number of topics that merit further thinking and discussion: • How potential Query Health actors/participants interact with each other • Governance, and where this should apply • Reducing transaction costs • Tiered relationships – establishing different levels of access relationships for queries and query results dependant on trust level • Accuracy/integrity of data • Workgroup members supported the idea of the OWG creating a sample Data Use Agreement template for use by potential Query Health networks and partners

14. Operations Workgroup Key Decisions and Next Steps • Work Assignments/Next Steps • Provide more detail for each of the Best Practices identified in the ‘Operational Requirements for Query Health’ document • Feedback due on 10/11 • Goal is to finalize in 10/13 meeting • Begin thinking about the next sections in the document • Privacy and Security (will be covered in the 10/13 meeting) • Risks, Issues and Obstacles • Conduct a scan of existing Data Use Agreements • Can be leveraged to create a sample Data Use Agreement Template

15. Technical Working Group Update from 10/6 Meeting

16. Technical Workgroup Update • First Call for Consensus of the Abstract Model was issued and closed • Positive Responses , good feedback • Addressed the feedback from the consensus call in detail on the WG call • Started discussing the query / results implications of the user stories

17. Abstract Model Updates Summary • Change Agent to Requestor Agent • Combine Gateway/Adapter to Responding Agent • Add clarification that all queries are “Asynchronous” • Change Clinical Data to Source Data to accommodate other information sources • Identify the Security and Privacy data more clearly • Add data usage policy attributes on the response • Combine sub-items under the Query/Results payload

18. User Stories Discussion • Discussion largely around the types of Queries and Results • Measure based queries • Expression based queries

19. Next Steps and Actions • Updated Abstract Model up for second round of consensus • Continue discussion of Query Types based on user stories • Discuss F2F plan and getting to Proof Of Concepts/details

20. Final Charter Status • All comments from the Initiative members have been received and edits have been added to the charter • When gaps have been identified where existing standards don't address a topic area, we will 1) identify an appropriate solution and then 2) propose such a solution to the relevant standards body. • One remaining NO vote to be addressed– will continue to work to receive community consensus

21. Final Face to Face Announcements – Goals for the Working Groups • Clinical Working Group • Complete User Stories • Complete Use Case Diagrams • Review DRAFT Functional Requirements • HOMEWORK – Review all Clinical Workgroup materials on wiki and be prepared to discuss and comment • Operations Working Group • Finalize Operational Requirements and Set Best Practice Priorities • Review Data Use Agreement Template Approach • HOMEWORK – Review Operational Requirements progress to date, and bring any best practices or data use agreements proposals or references • Technical Working Group • Identify candidates for technical foundation for reference implementation (running code) • Identify applicable standards • HOMEWORK – Proposals for technical foundation candidates (running code) and applicable standards